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Share Your Lymphedema Story!

For March Lymphedema Awareness month, we would like to feature clinicians, patients, and our sponsors as they share their lymphology experiences. We invite patients to share lymphatic journeys, clinicians to share pearls of wisdom, and sponsors to share how you make it easier for patients living with lymphedema. Create a 2-minute video to be featured on the
National Lymphedema 
Network.

Video submissions appreciated by March 1st.

Submit Video Here

Support Lymphedema Awareness

The NLN has been a driving force in the lymphedema community since 1988. Lymphedema Awareness Day, March 6, was founded in 1994 in honor of the day the National Lymphedema Network became incorporated as a nonprofit organization. Support the NLN and wear your T-shirt throughout the month of March, but especially on March 6.

Get Your T-Shirt Here

The NLN has a Lymphology Events page that includes both in-person and virtual educational opportunities. This includes events by sponsors, other educational providers, and lymphatic organizations. Most are FREE!

Lymphology Events

Lymphedema in the News

Exploring the Impact of Climate Change on Lymphedema Symptoms

published June 10, 2022
by 
Medical News

Read Article Here

Endemicity of Lymphatic Filariasis: An Experience From Field Monitoring

published January 24, 2023
by 
PLOS

Read Article Here

Clinical Staging and Genetic Profiling of Korean Patients With Primary Lymphedema Using Targeted Gene Sequencing

published August 10, 2022
by 
Scientific Reports

Read Article Here

2022 Conference
Videos Available

Conference Program

Conference registrants have complimentary access to the videos until March 3, 2023. Click the link below to access the videos via the conference platform.

If you were unable to attend and would like to access the content, please register via the link below.

NLN Members $149
Non-NLN Members $299

Log Into Eventmobi
Register Here

To purchase a digital copy of the full 105-page program, please click HERE.

Lymphedema Jobs

Florida

Granzow Lymphedema & Lipedema Center is looking for an Occupational or Physical Therapist to join their team.

Apply



 

World Cancer Day: A Leading International Awareness Day

World Cancer Day is held every February 4th. Raising awareness, improving education, and catalyzing personal and collective action is necessary to prevent cancer deaths and ensure care is equitable for all. IMD Health is proud to partner with influential organizations such as Canadian Cancer Society, Breast Cancer Network, Colorectal Cancer Canada, Lung Cancer Canada, Melanoma Canada, and many more. Send your patients home with medically vetted, patient-friendly patient guides, diagrams, and videos from these organizations using IMD.

 

VIEW HEALTH ASSOCIATIONS

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

Find information about Fulphila, including a video guide with instructions for use and Viatris Advocate Patient Support Program enrollment.

 

 

VIEW FULPHILA

 

 

 

Patient support resources, including VICTORY patient support program information, are available for KYPROLIS (carfilzomib), used to treat patients with relapsed refractory multiple myeloma. These resources can easily be emailed to patients as part of their consultation.

VIEW KYPROLIS

 

 

 

Find Amgen's MVASI healthcare professional and patient education for mCRC patients including a preparation and administration guide and a patient brochure.

 

VIEW MVASI

 

 

Find Nivestym resources in the Neutropenia topic, including a patient brochure, injection guide, professional tools, co-pay cards, and information about the Pfizer Liaison Patient Support Program.

 

VIEW NIVESTYM

 

 

 

 

 

Find Nyvepria resources in the Neutropenia topic, including a patient brochure, injection guide, co-pay cards, and information about the Pfizer Liaison Patient Support Program.

 

VIEW NYVEPRIA

 

 

Find Amgen's Vectibix healthcare professional and patient education for mCRC patients including a management guide and patient brochure.

 

 

VIEW VECTIBIX

 

 

 

 

VIEW THIS MONTHS UPDATED CONTENT

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 

 


View this email in your browser

Canadian Cancer Survivor Network
January 2023 Newsletter

In this issue:
  • Fighting Fires Equals Fighting Cancer
  • Biosimilars Mandated in Ontario
  • New Year, New Webinar Series
  • HPV Vaccination and the Fight Against Cervical Cancer
  • Join CCSN's Prostate Advisory Council
  • Do you live in Saskatchewan? We would like to hear from you!
  • Season of Giving Update


Biosimilars Mandated in Ontario

In the last days of 2022, the Government of Ontario decided to put its weight behind the use of biosimilars.

Starting March 31st, 2023, Ontario Drug Benefit recipients who are using an originator biologic will be transferred to a biosimilar at no cost.

What does this mean for cancer patients?

Click Here to Find Out
HPV Vaccination and the Fight Against Cervical Cancer
The Human papillomavirus, HPV, is the number one cause of cervical cancer, and has been linked to anal, penile, vulvar, vaginal, head and neck cancers. According to the Canadian Partnership Against Cancer, 1,350 women will be diagnosed with cervical cancer, and 410 will die from it. However, this same organization is touting a very impressive goal: to eliminate the disease by 2040, with a target of 90 percent of 17-year-olds vaccinated by 2025.

So, with 2 years left to go, how is the elimination of cervical cancer going?
Click Here To Find Out
Join CCSN’s Prostate Cancer Advisory Council
The Canadian Cancer Survivor Network (CCSN) is expanding its Prostate Cancer Advisory Council to provide guidance in the creation of a new prostate cancer website for patients, caregivers, and survivors. This website will provide aggregate information on all aspects of prostate cancer, from diagnosis to the latest research to caregiver resources to psychosocial support services to peer support groups. We have had a wonderful response from the community!

However, we are still looking for representation from Saskatchewan, Quebec, Newfoundland and Labrador, Nova Scotia, New Brunswick, and Prince Edward Island to truly have a national scope for this project. If you would like to join the council please email Lindsay Timm at participate@survivornet.ca.
Season of Giving
Thanks to our generous community we were able to raise thousands of dollars towards continuing our efforts in supporting the cancer community. Our supporters are the reason we are able to make any difference at all. It is because of you that we can continue to support cancer patients, caregivers, survivors and families.
Donate Today


Fighting Fires Equals Fighting Cancer

It’s no secret that firefighting is a dangerous job.

Each year dozens of names are added to the Fallen Fire Fighter Memorial run by the International Association of Fire Fighters (IAFF). Between 2019 and 2020, 469 firefighters were added to the wall in Colorado Springs. But while most would have the idea that firefighters made that sacrifice in burning buildings, the truth is much more concerning.

Click Here to Read More
New Year, New Webinar Series
Our 2023 Webinar Series is under construction and we are collecting some great content. Look for our webinars to start in the winter of this year!

In the meantime, check out our 2022 Webinar Series.
Get Caught Up on Webinars
We are also planning the next phase of our Cancer Survivor to Financial Survivor series. Stay tuned to new webinars and content in the new year.
Check Out The Series So Far
Do you live in Saskatchewan? We would like to hear from you!
We are looking for cancer patients, caregivers, and survivors who reside in Saskatchewan. We will be holding an All-Party Cancer Caucus in Regina. The topics to be discussed will be Cancer Care Disruption due to Covid-19 and the need for lung cancer screening. We want to hear about your experiences! If you are interested, click the button below or email participate@survivornet.ca to get in contact with Lindsay Timm. We look forward to connecting with you!
We have updated our Participate page with new opportunities to get involved in cancer research!
Find the List Here
February 23rd - 17th Canadian Melanoma Conference
March 4th - 7 Summits Snowshoe Challenge for Skin Cancer


 

Vaccine Education During Cold and Flu Season

It’s that time of the year again, and no one wants to sneeze and sniffle their way through the holidays! As cold and flu season approach, it’s easy to predict what clinicians will be getting this holiday season… patients with colds and flu visiting your office! Equip your patients with educational resources to help them better understand the importance of being vaccinated to protect themselves, and those around them.
From pain management, travel vaccination, pregnancy & immunizations, FAQs and more, send your patients home with patient-friendly resources from IMD’s partners The Mayo Clinic, Caring for Kids, CANImmunize, SKIP & Vaccines411 to help them understand the importance of being vaccinated this holiday season!


Learn more:

https://provider.imdhealth.app/signin

 

LEARN MORE

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

 

Allergic rhinitis is more than just a stuffy nose. Learn how to manage patients in primary care, when to consider immunotherapy, and more, with an exclusive educational program by Dr. Kaplan of Family Physician Airways Group of Canada, made possible by ALK. Learn more https://app.imdhealth.com/topic/13f8c1d5-de53-4823-8500-8c55a2a1e8c7/45cc1a91-85a3-4ec4-beb6-d3fb687ccd07


 

 

VIEW MODULE

 

 

 

Find resources from pms-ABIRATERONE, including information about the Ally Patient Support Program, a patient guide, pharmacy guide, and enrolment form. Learn more: https://app.imdhealth.com/topic/81658872-4305-465e-8d09-fb876f325b50/3894ecf6-4d38-4ea8-9dd1-18b12c6bb050

 

 

VIEW ABIRATERONE

 

 

 

Find resources from pms-PAZOPANIB, including information about the Ally Patient Support Program, a patient guide, and professional tools. Learn more: https://app.imdhealth.com/topic/201c9797-fc58-46fe-9937-43a485960524/3b5bd6ca-4cb0-4f1f-9963-74ec24fceb58

 

 

VIEW PAZOPANIB

 

 

Providing support, resources, product reviews and coping strategies for those pained by hyper-sensitivity to cold. The association stresses the need for medical intervention to rule out underlying causes. Learn more: https://app.imdhealth.com/topic/f1cb7cef-07ec-42d7-80f7-19d78e124527/027c575c-b979-48c3-82e2-3a1e511131f1

 

 

 

VIEW RAYNAUD'S ASSOCIATION

 

 

 

Find information about Fulphila, including a video guide with instructions for use and Viatris Advocate Patient Support Program enrollment. Learn more: https://app.imdhealth.com/topic/295b3799-98b4-48b8-8556-eb17c99545a7/9f56f6a5-b4c0-4dde-9827-70d8bd8a2a6b

 

 

VIEW FULPHILA

 

 

 

Find information about EVUSHELD for the prevention of COVID-19 illness in adults and adolescents who have a weaker immune system and are unlikely to be protected by a COVID-19 vaccine. Resources include a patient brochure, introduction, summary, and clinical study overview. Learn more: https://app.imdhealth.com/topic/c11a4d9d-0a78-4ef5-91b2-d2b3aad59260/385ff4f6-fc5c-4f88-8abe-f48385c58fca

 

 

VIEW EVUSHELD

 

 

 

GI CANCER MASTERCLASS

 

 

 Registration 

Registration Link: https://dxlink.ca/programs/GI-Cancer-Masterclass/


THE IMD MEDICAL LIBRARY IS GROWING

Check out this month's new health partners. Their patient-friendly resources are now 
available on IMD.


IMD Health is excited to announce our new partnership with the Michael J. Fox Foundation! Every person diagnosed with Parkinson's disease embarks on a unique journey. Parkinson's 360 is a resource developed by the Michael J. Fox Foundation to walk them through the different symptoms, emotional changes, and social changes that may arise along the way. Send your patients home with this robust resource using IMD!


More information: https://provider.imdhealth.app/signin

VIEW RESOURCE

 

VIEW THIS MONTHS UPDATED CONTENT

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:


 

 

 


 

 




Thank you for registering for "Cancer Survivor to Financial Survivor: Navigating Your Private Health Insurance Plan".

About this webinar:
· Overview the Canadian employer sponsored health benefits market with a focus on drug plan coverage.
· Explanation of the stakeholders that influence private benefit plan design and coverage decision-making
· Review of common formularies and drug plan designs and how they impact medication access
· How to determine which medications are covered by your plan
· How to advocate for coverage if you are declined

About the presenter:
Suzanne is a private health plan strategist who bridges the pharmaceutical and group benefits industry. Prior to beginning her consulting practice, Suzanne was National Manager Private Healthcare with the pharmaceutical company Hoffman La Roche Canada. During that time she developed and executed private healthcare strategies and managed a patient assistance program for biologic medications. Prior to joining the pharmaceutical industry Suzanne worked in group benefits in a wide variety of roles for almost 20 years, which included managing the drug programs for a major Canadian insurer. She is frequent speaker and contributor to both private market and pharmaceutical industry conferences and publications.

Please send your questions, comments and feedback to: info@survivornet.ca

How To Join The Webinar

Wed, Nov 30, 2022 7:00 PM - 8:00 PM EST

Add to Calendar: Outlook® Calendar | Google Calendar™ | iCal®

1. Click the link to join the webinar at the specified time and date:

Join Webinar

Note: This link should not be shared with others; it is unique to you.

Before joining, be sure to check system requirements to avoid any connection issues.

2. Choose one of the following audio options:

TO USE YOUR COMPUTER'S AUDIO:
When the webinar begins, you will be connected to audio using your computer's microphone and speakers (VoIP). A headset is recommended.

--OR--

TO USE YOUR TELEPHONE:
If you prefer to use your phone, you must select "Use Telephone" after joining the webinar and call in using the numbers below.
Canada: +1 (647) 497-9368
Access Code: 650-588-300
Audio PIN: Shown after joining the webinar

Webinar ID: 274-414-347

To Cancel this Registration

If you can't attend this webinar, you may cancel your registration at any time.


Good Afternoon!

We continue to be busy here at CCSN with our two webinar series!

On November 30th at 7 PM, Cancer Survivor to Financial Survivor presents Navigating Your Private Health Insurance Plan with Suzanne Lepage.

On December 1st at 1 PM, The CCSN Webinar Series Presents Young Adult Cancer Canada & the 8 Things You Need to Know About Cancer in the Prime of Your Life with Dani Taylor.

Click the links and images to find out more below!
Register for Navigating Your Private Health Insurance Plan
About this webinar:
· Overview of the Canadian employer sponsored health benefits market with a focus on drug plan coverage.
· Explanation of the stakeholders that who influence private benefit plan design and coverage decision-making
· Review of common formularies and drug plan designs and how they impact medication access
· How to determine which medications are covered by your plan
· How to advocate for coverage if you are declined
Register for Young Adult Cancer Canada
Cancer is different for young adults. Join Young Adult Cancer Canada’s presentation on our 8 key findings from our YACPrime Study on the intensified impacts of a cancer diagnosis for those in their young adult years, as presented by YACC staff member, social worker, and colorectal cancer survivor, Dani Taylor (she/her).
Both these webinars will be recorded, and a copy will be mailed out to the participants.

Your Biweekly Update from IMD Health

 

World Diabetes Day!

November 14th is recognised as World Diabetes Day! According to IMD’s partner Diabetes Canada, there are more than 5.7 million Canadians living with diagnosed diabetes (type 1 or type 2 diabetes), however, there are 11.7 million Canadians living with diabetes or prediabetes—a condition that, if left unmanaged, can develop into type 2 diabetes. The first step in preventing or delaying the onset of these complications is recognizing the risk factors, as well as signs and symptoms of diabetes.

The IMD Patient Engagement Platform offers resources from reputable North American health associations including Diabetes Canada, JDRF, Diabetes Care Community, Diabetes @ School, National Indigenous Diabetes Association to help your patients better understand and have the tools to prevent this chronic disease. Educate your patients on Diabetes with these engaging resources today!

 

LEARN MORE ABOUT WORLD DIABETES DAY

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

 

 

Find an informative resource booklet for patients living with kidney disease, including information about lab tests, exercise, nutrition, symptoms, and more, within the 'Understanding' section of the chronic kidney disease topic.

 

 

VIEW AMGEN

 

 

 

Find AVSOLA (infliximab) resources, including a patient brochure, PSP enrolment form, and prep and admin guide in the rheumatoid arthritis, ankylosing spondylitis, psoriatic arthritis, and plaque psoriasis condition areas. These resources can easily be emailed to a patient as part of their consultation.

 

VIEW AVSOLA

 

 

 

Find KANJINTI resources, including a prep and admin guide, stability one-pager, patient brochure, and product monograph under the industry partners tile as well as in the Breast Cancer condition area.

 

 

VIEW KANJINTI

 

 

Find LUMAKRAS resources, including a new mode of action video, pharmacy guide, patient brochure and product monograph, under the industry partners tile as well as in the lung cancer condition area.

 

 

 

VIEW LUMAKRAS

 

 

 

Find a guide to Otezla treatment for moderate-to-severe plaque psoriasis, psoriatic arthritis, or oral ulcers associated with Behçet’s disease, as well as information about the ez Start Patient Support Program, including enrolment forms.

 

 

VIEW OTEZLA

 

 

 

Find XGEVA resources, including a quick-start guide and mode of action video for healthcare professionals. XGEVA (demosumab injection) is indicated for reducing the risk of developing skeletal-related events in patients with multiple myeloma and in patients with bone metastases from breast cancer, prostate cancer, non-small cell lung cancer and other solid tumours. 

 

 

VIEW XGEVA

 

 

 

THE IMD MEDICAL LIBRARY IS GROWING

Check out this month's new health partners. Their patient-friendly resources are now 
available on IMD.

IMD Health is excited to announce our new partnership with HeadsUpGuys! Suicide is a leading cause of death for men under 50 years old. HeadsUpGuys provides resources specifically designed for men and their families, to prevent the continued erosion of men's mental health. Their content is derived from evidence-based research and includes both clinician and patient perspectives. Send your patients home with HeadsUpGuys content using IMD!

VIEW RESOURCES

 

 

 

 

VIEW THIS MONTHS UPDATED CONTENT

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 

 

 


Therapy News Fall 2022

Dr Vodder School International Fall Update 2022.


Good Day to you all.

I hope you all had a good summer and are settling into the change in weather and events of Fall.

We had a very busy couple of months since our last email. I wanted to catch you all up on what has been happening in the Vodder World.

Please email me if there is something that you would like to share in future posts as well.

Typing to you from my WorkStaycation at English Bay getting on top of Vodder World.


Regards , Grace


Link to Radio Interview with Grace in August 

Therapy Updates in Canada and US 2023

Please Click here for the Therapy Update Registration Form

Therapy Updates Organized by Dr Vodder School International (DVSI) for Vancouver, Toronto, Montreal, Halifax, West Palm Beach, Stowe, Singapore and Dallas for 2023. Working on more 2023 dates. All updated dates you can quickly find on the VODDER MLD App.


Please click on the link in the green box. It will have the form I need you fill out. Spaces are filling up so do not wait too long.


If you are attending Classes organized by the Teachers themselves, that will be indicated on the Dr Vodder Website as to who the organizer is. Please refer to the website.

Therapy Update Link for Singapore November 2022.

BCLA Sponsoring Awards towards Certification of Therapists in BC- $5000

If you have any Therapists in your practice that have taken Level 1 or old Basic, BCLA will be awarding 5- $1000 gifts to help pay for 5 Therapists in the 5 Health Authorities in British Columbia take their Level 3 Lymphedema Management course for the end of 2022. Future awards will be looked at by the BCLA as they fund raise to encourage more Therapists to be Certified equally through out the Province. Click the button for the application form that you can pass onto Therapists you know would be interesting in this Award.


BCLA  Award 

CONGRATULATIONS NEW LYMPHEDEMA THERAPISTS!!!

Koby Blanchfield was very busy this year making up for Pandemic holding pattern.


We had 10 New Therapists complete their training in Toronto in June, 13 New Therapists in July in New Zealand, 11 New Therapists in August in Toronto, 10 New Therapists in Vancouver in September and 10 New Therapists completing their training in Montreal in October taught by Meadbh McSweeney.


Dr Larysa Bondalevich, Dr Sara Nelson, Dr Neil Piller and Dr Marie-Eve Letellier doing the 2 days of Theory in person or via Zoom worked out well.


There are still 2 more classes on Koby's schedule before the end of the year. She is in Ottawa this week and then off to Melbourne.


Thanks to all for such successful trainings in 2022.


Welcome to the Dr Vodder Family to you all.


Please look at joining the Facebook Vodder Alumni and Dr Vodder International as a way of connecting with others to share and ask questions. It is a great way of networking.


Level 1 in Winnipeg with Denise Drisdelle Instructing- in October

There were other classes that ran and I congratulate all of them as well. I some times do not get all the photos of the classes, but what you can see 2022 has been a busy year!!!

Therapy Update Cases Presented

Therapy Update Toronto June 2022


Dr. Larysa Bondalevich gave an excellent and thorough presentation on Subcutaneous Adipose Tissue Diseases (Adipofascial Disorders).

 

Sondra Willis OT gave an interesting and sometimes humourus presentation on Lipedema: European vs US Consensus statements.

 

Koby Blanchfield gave a short presentation of research summary and case presentation, “In Support of MLD: a Clinician’s Perspective”

 

CASE STUDY PRESENTATIONS

 

Nadine Maraj-Nyiri RMT: presentation with a 60 year old client who has primary lymphedema, since the age of 18, and has more recently had a traumatic injury to the leg. Lively discussion ensued about the use of deep oscillation machine (Hivimat) to keep the tissue in the affected leg soft, reducing fibrosis, without focus on reduction.

 

Karen Kingsley RMT: presentation of a 49 year old client who has had Meniere’s for the last 20 years. During COVID, she had a flare up with nausea, dizziness. Karen’s treatment plan was using treatment of the nape of the neck, full neck (supine), ear specials, for 60 minutes/1x week. After the first 60 minute treatment , the patient felt spent and exhausted. After 6 treatments, the nausea was gone and dizziness was reduced. The patient then went on vacation, and had a flare up again. Karen was going to be seeing this client for more treatments.

 

Jennifer Plourde RMT: presentation of a 29 year old client with primary lymphedema and several co-morbidities, including delayed developmental ability, epilepsy, incontinence. 2 years ago, this client developed extreme bilateral leg swelling with weeping legs. In the last year, the whole body became very swollen, and the MD referred the client for therapy. The client had been struggling with the compression wraps. Jennifer asked the therapists attending, for suggestions.

 

Susan Shipton RMT: presentation was about a primary lymphedema client who had reduction with Coban and then started velcro wraps. However, the bilateral feet had extreme swelling, which could not be contained with the wraps. The toes were at risk of disappearing and the concern was the risk of nail infection.

 

Stephanie Webb RMT: presentation of a 63 year old female with lipedema since her late teens. The client is active with swimming and had some weight reduction with a keto diet. The client went to Germany for WAL liposuction, for arms, legs and buttocks. Over the course of 5 weeks, she wore compression for 24 hrs/day, before not using compression.

 

Nicole Dahl RMT: presented a client who had treatment with chemo and radiation for throat cancer, with the resultant swelling above the clavicle to the jaw. MLD treatment focused on redirecting fluid, using the occipital sequence (with no direct terminus) and stimulating the axillae, before directing from sternum to axilla. After 3 treatments (2 weeks between first and second treatment, and the 3rd treatment was one week after the second treatment) showed significant reduction (2cm) when before and after measurements were compared.

 


CASE STUDY PRESENTATIONS:


Nancy Ali RMT: presentation of a 60 year old client with left arm and thorax lymphedema following treatment of breast cancer and carpel tunnel surgery. Volume reduction was achieved however, this case illustrated the impact of fixed income on selection of treatment plan. This ultimately meant restricted treatment time and frequency. The client will be applying to the LAO compassion fund.


Amanda Podolinski RMT: Presentation of 60 year old client with right axilla swelling and swelling over the right pectorals. CDT: 3 treatments the first week (the swelling softened) followed by 5 treatments/week for another two weeks. The use of channel foam and a sports bra along with taping was discussed in relation to thorax swelling.


Jane Mical RMT: presentation of a 76 year old primary lymphedema client who had a negative reaction to statin drugs. After 6 hours rest, the reaction abated. Coban bandaging was tried, but was too itchy to tolerate. Short stretch bandaging was used for two days and then the client was able to fit into their shoes


Allison Luther OT on behalf of herself and her colleague, Ivy Rose Juan BSc, OT:

A case study providing rural outreach to a 51 year old male with scrotal hydrocele, who weighed 600 pounds, and was 4 hours away from Thunder Bay. Allison advocated for him, and he was flown into the hospital rehab by military plane. The therapists used short stretch bandaging attempting to reduce the scrotal swelling which was the size of a very large watermelon, with the penis inverted. Bandaging was not successful, as the patient could not toilet and declined a catheter. They then used Edema Wear size XL, which worked well, as nurses could reapply after toileting, and within 2 weeks he had reduced to a size small. He was measured for a Juzo scrotal support via video call with Juzo., and discharged to his home community with limited support. Unfortunately, the patient could not don and doff the scrotal support himself and declined local PSW support. Rural living has limited his success.


Lymph Taping Classes in Toronto and Vancouver 2024

3 Years in the making and we finally got Froukje Potijk in from the Netherlands. We are now planning on Taping for 2024 with Vancouver's Denise Drisdelle teaching the classes.

Get into a class now while there is still space. Shooting for June 2024 in Toronto and Vancouver.

Thank you Rockmount for the Taping supplies.


Lymph Taping 2024 Class Link



VODDER MLD APP

VODDER MLD APP for your Phone and Tablet

I am thrilled to have the VODDER MLD App up and running. You can put it on your mobile device. You can use the QR code (with your reader) or you can just click on the link to open it on your device.



This app is great to share with your patients as well, so they have a quick reference when they are traveling to easily find a Dr Vodder MLD therapist in their area. It is handy for you as well, as this app houses all the Registration forms and current dates and locations for all DVSI organized classes. It is a one stop shop/app :)


Thanks so much for Reading

Sincerely,


Grace Dedinsky-Rutherford

Dr Vodder School International

DVSI

1-800-522-9862


 

New look, same incredible platform!

The IMD team is very proud and excited to showcase the latest version of the IMD patient engagement platform to our user base of healthcare professionals! Not only has our platform received a major facelift - but significant features have been added to ensure that you are equipped with the best tools to inform and engage your patients on their treatment plan leading to a happier, healthier life!

With major accessibility improvements, the ability to create custom information packages for treatment needs, improved patient email summaries and more, be sure to check out the new and improved IMD platform.

Please use your credentials to sign in to your IMD account, and contact support@imdhealth.com if you have any questions. Learn more about IMD's awesome new features that are available to you here

 

CHECK OUT THE NEW EXPERIENCE

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 


 

 

Evenity's healthcare professional and patient resources are now available within the Osteoporosis topic - including patient brochures, a self-injection guide and video, and a dosing guide. 

VIEW EVENITY

 

 

 

Find information about EVUSHELD for the prevention of COVID-19 illness in adults and adolescents who have a weaker immune system and are unlikely to be protected by a COVID-19 vaccine. Resources include a patient brochure, introduction, summary, and clinical study overview.

 

VIEW EVUSHELD

 

 

 

Find resources for healthcare professionals including a body map counselling tool, a checklist to identify and monitor patient signs and symptoms associated with adverse events related to Pembrolizumab, and other tools.

 

 

VIEW KEYTRUDA

 

 

PAAB aims to protect Canadians by ensuring that advertising to HCPs is truthful, balanced and evidence based. We need your input to ensure that drug advertising meets your expectations and needs. Please take 5 minutes to complete the survey. 

 

 

 

VIEW PAAB

 

 

 

Find new healthcare professional and patient resources from Prolia within the Osteoporosis topic, including patient FAQs, leave behinds, self-injection guides, and more to support you and your patients during and post consultation.

 

 

VIEW PROLIA

 

 

 

Find new healthcare professional and patient resources from Repatha within the High Cholesterol topic, including patient brochures and FAQs, self-injection video tutorials, a dosing card, and helpful patient profiles.

 

 

VIEW REPATHA

 

VIEW THIS MONTHS UPDATED CONTENT!

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 



Canadian Cancer Survivor Network
November 2022 Newsletter


Click here to read


Announcing newly designated LE&RN Comprehensive and Network Centers of Excellence

Dear LE&RN Community,

It is with great pride in our lymphatic community that we announce these newly designated LE&RN Referral Network, Surgery, Surgery Network and Conservative Care Centers of Excellence in the Diagnosis and Treatment of Lymphatic Diseases. The following 5 institutions now join our current list of 45 Centers around the globe, for a total of 50 Centers dedicated to improving the lives of all those living with lymphatic diseases. The newly designated Centers of Excellence are:

Referral Network of Excellence (all services provided within the institution and/or nearby collaborating care providers):
  • University of Miami Health Services – Miami, Florida
Surgery Centers of Excellence (all surgical and follow-up services provided within the same institution and its affiliates within close geographical proximity):
  • Fondazione Policlinico Universitario - Agostino Gemelli IRCCS – Rome, Italy
  • Santa Creu i Sant Pau - Clinica Planas – Barcelona, Spain 
Surgery Network Center of Excellence (all surgical and follow-up services provided within the institution and/or nearby collaborating care providers):
  • Baptist MD Anderson Cancer Center – Jacksonville, Florida
Conservative Care Center of Excellence (all conservative care treatment services provided within the same institution and its affiliates within close geographical proximity):
  • Sanwari Bai Surgical Center – New Delhi, India

The Global Oversight Committee continues to take on the challenge of rigorously vetting applications to guarantee compliance with strict standards. Led by Professor Peter Mortimer (St. George's, University of London, UK) and Melissa Aldrich, Ph.D. (UT Health, TX), the Oversight Committee includes nineteen additional lymphatic disease experts from Sweden, the Netherlands, France, Germany, Belgium, the United Kingdom, Italy, Australia and the United States. We thank them for this incredible service to the community.

The LE&RN Centers of Excellence website contains links to all these institutions as well as more information about the program and standards. We welcome hearing from patient advocates who utilize the services of these institutions and who would be willing to serve on Affiliate Boards which will work with LE&RN and the Institutions on standards compliance and advancement in care.

You can help by completing the patient survey at LymphaticNetwork.org/COEsurvey after your interaction with a COE and offering your time to an Affiliate Board by emailing us at COE@LymphaticNetwork.org.

Beginning in mid-November 2022, we will be accepting Letters of Intent from institutions interested in applying for consideration as future LE&RN Centers of Excellence.

It is a good day for the lymphatic disease community. I thank and congratulate all who have played a role in this achievement, including LE&RN Supporting Members and donors. These milestones would not be possible without that support.
 
Sincerely,

William Repicci
President & CEO, LE&RN


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2022 Conference Updates

Pre-conference Skill Building Labs have been added to the amazing conference line-up. Spend 2 hours learning alongside experts in their fields while reviewing the necessary skills for lymphatic treatment. Space is limited, and is on a first-come first-serve basis.

Pre-Conference Registration
Conference Program

Join Us Online for $49

Can’t make it to Cleveland? We invite you to join us virtually and participate in general assembly as if you were in Cleveland. Register using the link below for up to 18 contact hours for those who are able to join the live conference. Recordings for the conference will be available afterwards, though CEUs will not be awarded.

NLN Members $49 (Log In)
Nonmembers $199

Register

Models with Lymphedema Wanted

We are still looking for 12 more models who live in New York City to walk the runway at the 2022 Conference in Cleveland. (Clinicians welcome!) You will get the opportunity to be styled by Katti Soheil Barenblatt. Katti has worked for designer brands like Prada, Kenzo, Miu Miu, and Bottega Venetta. Free compression garments and free conference registration. You just have to meet with Katti in her Greenwich Village studio and get to Cleveland for the fashion show on 11/17/22. All you need is confidence to do the catwalk.

Join the NLN Fashion Show

Lymphedema in the News

Lymph Node Transplant Surgery Performed for the First Time in Israel

published October 23, 2022
by The Jerusalem Post

Read Article Here

Microfluidics Provide New Cancer Treatment for Combatting Common Side Effect

published October 3, 2022
by Microfluidics

Read Article Here

Compression Therapy to Prevent Recurrent Cellulitis of the Leg

published August 13, 2022
by the New England Journal of Medicine

Read Study Here

Copyright National Lymphedema Network 2022. All rights reserved.
PO Box 1008, New York, NY 10276
(800) 541-3259
EIN 94-3068338

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2022 Conference Updates - Please click here to read



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Join NLN Membership

2022 Conference Update

2022 Conference
Learn More
Program
NLN Members, Log in to Register
Register
Sponsors

Student Registration $349

CLTs certified October 2021+ Residents, Fellows
Physical Therapy Students
Occupational Therapy Students
Massage Therapy Students
Medical Students
Nursing Students

Acceptable Documentation List

Email 2022@lymphnet.org

Lymphedema in the News

Deep Learning-Based Quantitative Estimation of Lymphedema-Induced Fibrosis Using Three-Dimensional Computed Tomography Images

Read Study Here

These Essential Foods Can Help Improve Your Lymphedema Symptoms

Read Article Here

Resiliency, Family Support Help Hispanic Breast Cancer Survivors Manage Lymphedema

Read Article Here

To Everyone who Supports the NLN

Our members, sponsors, donors, and everyone else who likes, subscribes, and follows the National Lymphedema Network. We appreciate YOU!

Copyright National Lymphedema Network 2022. All rights reserved.
PO Box 1008, New York, NY 10276
(800) 541-3259
EIN 94-3068338
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NLN Expert Clinician FAQs - click here to read


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Not a Member? Become one today!

Explore the Patient Resources Page Here

Conference Information

Black Attire Networking Reception

The conference will open with a "Black Attire" networking reception in the Exhibit Hall on Thursday evening.
Whether you would like to come in black casual wear, black formal wear, black business attire, or any other black attire appropriate for the professional conference setting; we invite you to show up in black to kick off the conference showing solidarity, united in our quest to further Lymphology by elevating 
The Art and Science of Surgery and Therapy.

Registrants can purchase tickets for guests to attend this event.

More Information Here

Featured Sponsor

medi USA is the Magenta Sponsor for the National Lymphedema Network. The company offers an array of compresison garments from custom and ready to wear options, elastic and inelastic, daytime and nightime, but they have so much more to offer! Click below to visit their site!

More on medi USA

medi is also the sponsor for this month’s

MicroConference™

Free online education activity for NLN members
August 27, 2022 12:00- 2:15 pm EST

Members Log in Here

Upcoming Clinical Focus Group

Friday August 26, 2022 6:30 pm ET

Facilitated by Tia Gray & Donald Thomas, this NLN Clinical Focus Group on Oncology will focus on topics surrounding Oncology Lymphedema Practice.

This meeting will focus on Coping with Lymphedema and Body Image, including a pre-recorded conversation with Dr. Erica Dawkins PsyD, MED, CSP, Clinical Psychologist, Professor, Clinical Sexologist and Founder of Revolutionary Perspectives.

These meetings are for members only.
Each session will be recorded for future viewing on the membership platform.

Members Log in Here

Lymphedema in the News

Stanford University Enrolls First Subject in HEAL (Human Upper Extremity Acebilustat Lymphedema) Trial

Read Article Here

Breast Cancer Survivor Champions Federal Lymphedema Legislation

Watch Video Here


 

For more information, click here to read the newsletter 


 Information on Truncal Lymphedema: Click here to read

Edema is the medical term for swelling. Body parts swell from injury or inflammation. It can affect a small area or the entire body.
Edema | COR Medical Group


Lymphedema is swelling caused by excess lymphatic fluid (lymph) collecting in the body's soft tissues, usually in the arms or legs. It can affect one or both sides of the body. This is a chronic condition for which there is no cure. Treatment methods are available to manage it. 



If you suspect that you have one of these conditions, contact your physician as soon as possible.
 

When Swelling, Edema or Lymphedema affect the FEET, it may be difficult to find footwear that supports and fits correctly.

Paradigm Medical Offers Exceptional Solutions for These Conditions!


*Classic Slide*
PSL600 By Pedors

EXTRA DEPTH
EXTRA EXTRA EXTRA WIDE
GREAT RANGE OF SIZES 

 

Designed for people with VERY swollen feet, or who may wear braces, orthotic devices, or bandages.

Morbid Obesity, Venous Disease and today’s treatments for cancer can lead to a compromised lymphatic system and severe swelling/lymphdema in the legs including the feet. It can be difficult for patients and healthcare providers to find the correct footwear to manage these specific needs.

Paradigm Medical is pleased to offer the 
Pedors Classic Slide.


This shoe allows the foot to be placed entirely on the footbed while the long adjustable touch closure straps contour the foot for a customized fit.

For proper size selection, start with your normal shoe size (by length), ensuring that the specific shoe has plenty of depth and a deep toe-box to accommodate bandages and/or swelling in the foot, but also in the toes. The other important measurement is foot girth because the swelling and/or bandages can caused the foot to change in size and volume.

DOWNLOAD the Pedors Shoe Fitting Guide HERE!
Pedors Classic Slide PSL600 - Available in 6E width only

MEN'S SIZES:  5 to 15 (not available in half-sizes)
WOMEN'S SIZES: 7 to 17 (not available in half sizes)

The Pedors Classic Slide is only currently available in the 6E (XXX-W) width, designed for people with very swollen feet. The adjustable velcro strap allows to adjust for girth and to secure the slide to the foot.

FEATURES:  Pedoprene™ Stretch Upper, Touch Closure Strap(s), Removable Insert for Custom Orthotics, Wide Midfoot, Sturdy and Supportive, Pedoprene upper panel can be heat molded.


ORDER THE PEDORS CLASSIC SLIDE FOR EXTRA WIDE OR VERY SWOLLEN FEET


Looking for other solutions for Edema and Lymphedema? CLICK HERE! We have MORE OPTIONS!



Classix MAX Orthopedic Shoe

Best for Moderate to Severe Edema and Lymphedema



 

HELP YOUR PATIENTS HAVE A HAPPY, HEALTHY SUMMER WITH IMD!

For many patients, summer marks a time for camping, travelling, beach fun and socializing with family and friends in the sweet heat. For healthcare professionals, it means that more patients are suffering from heat exhaustion, sunburn and bug bites. Now is the perfect time to share resources with your patients to help them have a healthy and happy summer. 

The IMD Health Patient Engagement Platform offers resources on summer Health from trusted sources like the Public Health Association of CanadaCaring for Kids and the Melanoma Network of Canada to better engage and educate patients prepare for the outdoors and prevent harmful conditions like Lyme disease and heat rash. With content that covers tick hiding spots, insect repellents, permethrin-treated clothing, and more - IMD has the educational resources your patients need to have a safe and healthy summer. 

VIEW RESOURCES

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

 

Do your patients have pollen or outdoor mold allergies? Aerobiology Research Laboratories can help you educate your patients on how to reduce health effects and improve their quality of life. Send your patients a resource package on accessing daily pollen levels, symptom trackers, and more tips to minimize exposure.

VIEW AEROBIOLOGY


 

 

IMD offers resources for healthcare professionals and patients on Aranesp coping with anemia due to Chronic Kidney Disease, including disease state information, healthy living tips, self-injection guides, and more to support you and your patients during and post consultation.

 

VIEW ARANESP

 

 

Cetaphil has resources to help support your patients suffering from dry, sensitive skin, under the following condition areas: Acne, Rosacea, Atopic Dermatitis (Eczema), and Psoriasis.These resources can easily be emailed to a patient as part of their consultation.

 

VIEW CETAPHIL

 

Access content from DDAVP within the Bedwetting and Bedwetting: What you need to know topic that includes key information for HCPs, including a new infographic. These resources can easily be emailed to a patient as part of their consultation.

 

VIEW DDAVP

 

Find new healthcare professional and patient resources from Prolia within the Osteoporosis topic, including patient FAQs, leave behinds, self-injection guides, and more to support you and your patients during and post consultation.

 

VIEW PROLIA

 

Find new healthcare professional and patient resources from Repatha within the High Cholesterol topic, including patient brochures and FAQs, self-injection video tutorials, a dosing card, and helpful patient profiles.

 

VIEW REPATHA

 

THE IMD MEDICAL LIBRARY IS GROWING!

Check out this month's new health partners. Their patient-friendly resources are now available on IMD.

 

 

Brain tumours are unpredictable, complex, and remain incurable. Their effects are physical, emotional, financial, and can last a lifetime. That's why Brain Tumour Foundation of Canada is focused on giving hope to the estimated 55,000 Canadians currently living with a brain tumour. With a few clicks, you can send your patients engaging resources from Brain Tumour Foundation of Canada using the IMD Health patient education platform.

 

VIEW RESOURCES

 

 

The Canadian Lymphedema Framework aims to define and promote education for healthcare professionals and patients, to improve lymphedema management and provide access to comprehensive treatment. IMD Health has partnered with the Canadian Lymphedema Framework to bring their medically-vetted patient guides and fact sheets to your fingertips, both to reference during consultations and to email home to patients, family members, and caregivers.

 

VIEW RESOURCES

 

 

 

Pancreatic cancer has the highest mortality rate of all major cancers. Pancreatic Cancer Canada is committed to making an impact in raising the survival rate through increasing awareness of the disease and improving patient and family access to specialized care and support at every stage. Empower your patients to believe they play an instrumental role in the trajectory of their cancer with Pancreatic Cancer Canada's various resources including treatment options on IMD. 

 

VIEW RESOURCES

 

VIEW THIS MONTHS UPDATED CONTENT!

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 

 

 

CONNECT WITH IMD ON SOCIAL MEDIA

 

 

 

 

 


Find out more about Lymphedema Program, McGill University Health Centre, a LE&RN Network of Excellence

Please click here to read


Additional Information and Resources


PDF Copies of the LIMPRINT Reports
Click here to View


Inform Yourself and Take Control

Click here to read the article  

Watch the video 


The Lymphedema Guru

  • Pediatric Lymphedema: The Story Behind Brylan's Feat Foundation - Click here to read
  • Chronic Wound Care: Reading the Weep - Click here to read
  • How to Locate a Qualified Lymphedema Therapist - Click here to read
  • Questions and Answers on Head and Neck Lymphedema (HNL) - Click here to read


Lymphedema Footwear


Paradigm is there to help you find the RIGHT footwear for lymphedema.

Please click here for more information on a few solutions for moderate to severe cases of lymphedema. 





L-Dex Technology provides new approach for prevention of cancer-related lymphedema - Click here for more information


iMD Health

 

 

 

 

Inform, educate, and support your patients with kidney cancer during kidney cancer awareness month!

 

World Kidney Cancer awareness day was on June 16th. On this day, the global community came together to raise awareness of the issues that patients and caregivers face everyday - and IMD is here to support healthcare professionals increase their patient's understanding of this disease.

Be sure to effectively educate your patients about kidney cancer with IMD's library of engaging pamphlets, diagrams and videos from our partnered oncology health organizations including the Canadian Cancer Society, Wellspring Cancer Support, and Young Adult Cancer Canada. All resources can be sent home to patients to review in their own time, and with their caregivers.

 

VIEW N

 


NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 


 

Do your patients have pollen or outdoor mold allergies? Aerobiology Research Laboratories can help you educate your patients on how to reduce health effects and improve their quality of life. Send your patients a resource package on accessing daily pollen levels, allergen forecasts for the season, symptom trackers, and tips to minimize exposure.

VIEW AEORBIOLOGY

 

 

 

Find AMGEVITA brochures and self administration videos for patients with plaque psoriasis, hidradenitis suppuratuva, uveitis, crohn's disease, ulcerative colitis, rheumatoid arthiris, ankylosing spondylitis, and for children with polyarticular juvenile idiopathic arthritis or uveitis.

VIEW AMGEVITA

 

Find Enbrel brochures for patients with plaque psoriasis, rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, and for children with pediatric psoriasis or juvenile idiopathic arthritis, as well as information about Enliven, the Enbrel support program.

VIEW ENBREL


Of all the kidney cancers, renal cell carcinoma (RCC) is the most common. Click here to learn more about how Merck Canada is shedding light on renal cell carcinoma, and to watch their informative video on RCC in Canada.

VIEW MERCK

 

 

 

 

Find a guide to Otezla treatment for moderate-to-severe plaque psoriasis, psoriatic arthritis, or oral ulcers associated with behçet’s disease. Send Otzela's resources home with your patients to review in their own time, and with their caregivers.

VIEW OTEZLA


 

Stelara's patient and healthcare professional content is available in crohn's disease and ulcerative colitis, including a Biologics Comparison Tool. These resources can be sent home to patients and their caregivers for self-led patient education. 

VIEW STELER


View this month's updated content!

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 

 


Connect with IMD on Social Media!

 

 

 


Questions, comments or concerns? Email info@imdhealth.com for further inquiries.

IMD Global Health Corp., a subsidiary of CloudMD Software & Services.

This newsletter is intended to provide you with the latest information on updates, upgrades, new partners, and new content on the IMD Patient Education Platform. You are receiving this because you have previously registered for an account at app.imdhealth.com. If you no longer wish to receive these newsletters, you can unsubscribe below.  


Lymphedema Association of Ontario
Mailing Address: 262-2869 Bloor St. W., Toronto, ON M8X 1B3 Canada
1-877-723-0033 | 416-410-2250 | info@lymphontario.ca
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