NEWSLETTERS & INFORMATION

We like to share information here that we gather from newsletters we receive that we think will be of interest to you. 


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LIVE WEBINAR
Certificate Training: Pneumatic Compression Therapy and the Treatment of Lymphedema For Health Care Professionals Only

Thursday October 26th @ 12:00 PM (EST)



REGISTER NOW 

 

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Pneumatic Compression Therapy and the Treatment of Lymphedema.

At Paradigm Medical we are committed to advancing treatment options for patients with lymphedema.  As a Health Care Professional, you are on the front-line of working with these men & women and their health concerns.  We want to support you so you can help them lead healthy and meaningful lives.

We invite you to join us on Thursday October 26th to attend our certificate training program on Pneumatic Compression Therapy and the Treatment of Lymphedema (Wound Care). 


Here's what you'll learn:

Distribution of Lymph Tissue Fluid Flow Unique to Non-Peristaltic Pneumatic Compression Therapy

  • Lymphedema Management:  Clinical & At Home Treatment Options
  • Pneumatic Compression Devices:
    • How the Technology Works
    • Reviewing the Scientific Studies
    • Types of Pumps & Differences (NEW PRODUCTS REVIEW)
    • Selecting the Appropriate Device
    • Garment Sizing/Fitting
  • Suggested Protocols
  • Contraindications
  • Q & A  - Get your questions answered!

It is a Two Part Certificate Training Program: 

  1. Part 1 - Online Presentation Discussing Lymphedema (Wound Care), Treatment Options, How the Technology Works, Selecting the Appropriate Device, Sizing & Fitting Garments, and Contraindications.
     
  2. Part 2  - Arranged One-On-One with Each HCP. After the Completion of Part 1, We Will Schedule a Time for a Demo of the Bio Compression Pneumatic Compression Pump and Hand-On Training on How to Operate the Device.

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LYMPHATIC EDUCATION & RESEARCH NETWORK

> October 2023

Dear Dolores,


It is with great pride in our lymphatic community that we announce the first group of newly designatedLE&RN Centers of Excellence in the Diagnosis and Treatment of Lymphatic Diseases. We welcome this distinguished group of organizations to the growing network of Centers of Excellence worldwide! Stay tuned, we look forward to announcing the next group of newly designated Centers of Excellence in the weeks ahead.

Congratulations to the First Group of

Newly Designated Centers of Excellence!

Brigham and Women's Hospital

Boston, MA, USA

Comprehensive Cancer Center of Excellence


Center of Prevention, Diagnosis and Treatment of Lymphedema

Lymphatic Diseases for Adults and Children Metropolitan Hospital

Athens, Greece

Comprehensive Center of Excellence


Massachusetts General Hospital

Boston, MA, USA

Comprehensive Network Center of Excellence


Uppsala University Hospital

Uppsala, Sweden

Comprehensive Center of Excellence


Washington University

St. Louis, MO, USA

Comprehensive Network Center of Excellence


Our Global Oversight Committee continues to take on the challenge of rigorously vetting applications to guarantee compliance with strict standards. Led by Professor Peter Mortimer (St. George's, University of London, UK) and Melissa Aldrich, Ph.D. (UT Health, TX), the Oversight Committee includes nineteen additional lymphatic disease experts from Sweden, the Netherlands, France, Germany, Belgium, the United Kingdom, Italy, Australia and the United States. We thank them for their incredible service to the community.

The LE&RN Centers of Excellence website contains links to all these institutions as well as more information about the program and standards. We welcome hearing from patient advocates who utilize the services of these institutions and who would be willing to serve on Affiliate Boards which will work with LE&RN and the institutions on standards compliance and advancement in care.

You can help by completing the patient survey at LymphaticNetwork.org/COEsurvey after your interaction with a Center of Excellence and offering your time to an Affiliate Board by emailing us at COE@LymphaticNetwork.org

Beginning in November 2023, we will be accepting Letters of Intent from institutions interested in applying for consideration as future LE&RN Centers of Excellence.

It is a good day for the lymphatic disease community. I thank and congratulate all who have played a role in this achievement, including LE&RN Supporting Members and donors. These milestones would not be possible without that support.

Sincerely,

William Repicci

President & CEO


CANADIAN CANCER SURVIVOR NETWORK

> September 2023

In this issue:
  • Cancer Can’t Wait: Governments from across Canada should expedite the implementation of a new cancer framework for Canadian firefighters
  • Rising Wildfires, Rising Injustice: The Battle for Fair Compensation for Firefighters
  • CCSN's Webinar Series Returns
  • New in Act: Firefighting and Cancer
  • The Changing Relationship between Cancer and Hope
  • What is a Cancer Survivor to You? Part 1
  • Have you been diagnosed with COVID-19? We want to hear from you!

OTTAWA, ON, Sept. 5, 2023 /CNW/ – The Canadian Cancer Survivor Network (CCSN) is urging governments across the nation to make good on their promise to protect firefighters from cancer.

“As we’ve said before, Cancer Can’t Wait,” says CCSN President & CEO Jackie Manthorne. “During COVID-19 we witnessed the interruption of cancer care delivery to patients. Now, after the worst wildfire season in Canadian history, we’re all witnessing the risk of structural and wildland firefighters’ developing cancers due to occupational exposure. It’s critical to protect firefighters from developing cancer. They simply can’t wait.”

It’s critical to protect firefighters from developing cancer. They simply can’t wait.

Read More


Rising Wildfires, Rising Injustice: The Battle for Fair Compensation for Firefighters

CCSN is calling on all provinces and territories to pass presumptive legislation for cancer in wildland firefighters and to ensure its immediate enforcement. This would guarantee that these firefighters have the same access to compensation as other firefighters who develop cancer on the job.

Furthermore, CCSN is also calling for these long overdue amendments to ensure that presumptive legislation applies to wildland firefighters not only after it’s implemented but also retroactively, covering past cases where these dedicated individuals have been affected by job-related cancer without access to proper compensation.

Read More
New in Act: Firefighting and Cancer

Over the last few years, wildfires have become a concern for all Canadians. CCSN is making known the risk firefighting poses for the health of these front line workers.

Firefighting is one of only four professions that the International Agency for Research on Cancer (IARC) lists as a Group 1 carcinogen. Circadian rhythm disruptions and exposure to diesel engine exhaust before they even see a fire, coupled with the toxic cocktail of known carcinogens they interact with on a regular basis, means that firefighting and cancer are directly linked.

Find Out More
We’re seeking the voices of people who have been diagnosed with COVID-19! Your invaluable feedback can help influence decision makers and drive better outcomes. If you’re an adult who has had a positive COVID-19 or SARS-CoV-2 test result, we want to hear from you! Whether you've already undergone treatment or would consider taking a treatment for a future COVID-19 diagnosis, your insights are crucial. Your input will go towards informing a submission on Paxlovid. Click the link below to fill out our patient survey and help empower our community to advocate for enhanced treatment options: https://www.surveymonkey.com/r/FS7MPKT

CCSN's Fall Webinar Series Returns with The Real Burden of Prostate Cancer Treatment
CCSN's 2023 Webinar Series kicks off with a special Prostate Cancer Awareness Month entry with Andre Deschamps

About this Webinar: André Deschamps will show the North American results of the Europa UOMO Euproms studies. These are the first studies ever from patients for patients, measuring the burden of treatment. More than 5000 patients have shared their experiences after treatment.  The data has been analyzed by the university of Rotterdam in the Netherlands and has been published in peer reviewed scientific papers.
Register Here!
What is a Cancer Survivor to You? Part 1

What is cancer survivorship? How does one survive cancer? Can one survive cancer?

Survivorship encompasses many of these differing definitions, and likely more. CCSN ascribes to the three-phase model. A survivor begins as an acute survivor, which lasts from diagnosis and throughout treatment. Then extended survivorship begins, which focuses on post-treatment issues. Finally, permanent survivorship is for those who have gone years without cancer treatment and recurrence seems unlikely.

But the issue is more complex than that. And so, we are asking for your input.

Read More
The Changing Relationship between Cancer and Hope

I recently talked with CCSN’s President & CEO, Jackie Manthorne, about misinformation and cancer care.

With all the fake news and uncertainty around research results, treatment and survivorship, Jackie made the point about why some people will take misinformation to heart. Often people are told that their cancer is incurable, and that they will die. In her experience, she said that some people accept it, and look to get their affairs in order. Some, however, embrace misinformation. They reject what their doctors say, and look to alternative “cures,” which at best leads them to ineffective treatments, or worse,outright scams. Their hope is used against them.

With the passing of Never Give Up Day, it is certainly something to think about.

Read More
September 19th - Accelerating Access: Delivering equitable care across the cancer continuum
September 20th - The PCC Survival Classic
September 24th - after BREAST CANCER’s Pink Diamond Gala
October 14th - Kathy’s Run for Pancreatic Cancer
October 19th - World Bladder Cancer Patient Forum 2023
October 26th - Early Age Onset Cancer Virtual Symposium

INTERNATIONAL LYMPHOEDEMA FRAMEWORK

> August 2023



  AUGUST 2023

LYMPHO NEWS

Dear friends,

We are pleased to welcome you to the August 2023 ILF newsletter. This summer (if you are in the Northern hemisphere) has been complicated by very high temperatures and the threat of fires. How difficult this must be for people living with lymphoedema, needing to wear compression and having to deal with the heat too. All the more reason for us to work together as a unified group of patients, medics, therapists, academics, and industry to create a stronger impact and encourage positive change for individuals living with lymphoedema. Work is ongoing, with research looking at new and novel ideas, but it takes time and money. Sadly, there are still many purse-holders who do not see the need. We have evidence, but need more. Can you help us in this? Please let us know what is happening in your village, town, state, or country to help ensure that people know about the reality of lymphoedema.

Do let us know your news, so that we can share it internationally through this newsletter.

With best wishes from
Christine Moffatt CBE and the ILF Board of Directors

International updates

European patient organizations unite to put compression #UnderPressure

In 2020, 24 patient associations from across Europe came together to create and co-sign a manifesto outlining the challenges, wishes and needs for those living with lymphedema. The year after, a smaller group of patient associations decided to work on a campaign for World Lymphedema Day highlighting the one thing lymphedema patients all have in common — compression garments. It was decided to put compression #UnderPressure. A website has been launched dedicated to informing patients and carers about compression garments. Despite national borders, cultural and linguistic differences we are united for the benefit of the patients, we are stronger together — www.compressionineurope.org

 

Canadian Lymphedema Framework

Did you know? The Canadian Lymphedema Framework publishes a quarterly magazine, Pathways. Our publication addresses the need for lymphedema awareness and education among patients, those at risk, and health professionals. Contributors to Pathways include dedicated opinion experts in the field of lymphedema who help advance topics that address the critical issue of lymphedema care. Learn more about Pathways and subscribe at www.canadalymph.ca/subscriptions

We welcome and encourage the lymphedema community to send us ideas for themes, topics, and authors that they would like to see featured in Pathways. We also invite submissions for consideration by our editorial board for publication in a future issue. Learn more about our regular columns and contributor guidelines here: https://www.canadalymph.ca/columns/. Contact us at: pathways@canadalymph.ca


And, to hear more about what our international frameworks are doing worldwide, just click here


Industry support

The work of the ILF would not be possible without industry support. We thank the ILF Industry Partners for their continued engagement and support.



INFORMATION:

Deletion of single gene promotes growth of functional lymphatic valves

Targeting the gene Foxo1 may offer an early treatment approach for hereditary lymphedema

Date:August 10, 2021Source:University of South Florida (USF Health)Summary:A preclinical study unexpectedly identified the gene Foxo1 as a potential treatment target for hereditary lymphedema. Valve loss or dysfunction that disrupts the flow of lymph fluid is strongly associated with lymphedema in patients. But no one has discovered whether new valves can be grown or if defective ones can be fixed. The new study, using a model of human primary lymphedema, shows that both are possible


READ MORE HERE: https://www.sciencedaily.com/releases/2021/08/210810110953.htm?fbclid=IwAR0mx2dPhExbkZVgSOdTBW8y4x781vwxIiAk5gw6jMGFS86wUETacQIeo5s


Mayo Clinic Ventures - Crunchbase Investor Profile & Investments


Mayo Clinic Q&A podcast: Microsurgery can help treat lymphedema





 

 

 

Oncology Partner Spotlight

This week, IMD Health is highlighting our many valued oncology partners. Our partnerships with these leading patient organizations are essential in our commitment to providing easily accessible, up-to-date digital health education to healthcare providers, patients, and their families on the IMD platform. Access to patient resources on our easy-to-navigate tool facilitates conversations with healthcare providers and ensures patients are better prepared to understand and manage any challenges throughout their cancer journey.

Browse our health associations page to discover content from the following oncology partners:

Learn More

 

 

 

 

 

FEATURED RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

 

 

 


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A Note From the ED


I am a firm believer that access to information allows patients to have informed discussions with their healthcare providers and experience better outcomes. Since 2007, the Canadian Skin Patient Alliance (CSPA) has made tremendous progress on the advocacy and education fronts to improve the well-being of people living with skin, hair, and nail conditions. Our excellent resources, developed in collaboration with medical experts and people with lived experience, empower patients and their loved ones as they navigate challenges within the healthcare system and strive to be their own best advocate.  


Millions of people across Canada are impacted daily by skin conditions. This is a community with a burden that too often goes unnoticed. However, the team at the CSPA is working to change that. We are championing rights for skin patients of every age and background and breaking barriers to ensure proper care and treatment for all. 


Thank you for supporting our mission. Together, we can make a difference. 


Best,

Rachael


GlobalSkin GRIDD Project


Our friends at GlobalSkin are conducting a research study investigating the impact of dermatological conditions on patients’ lives. GRIDD (Global Research on the Impact of Dermatological Diseases) is the first global, patient-initiated, patient-led research project in dermatology. The CSPA’s goal is to collect as much data as possible on the true impact of dermatological conditions across the globe. You can help us here. 


Recognize a Special Caregiver - Nominate Them Today!


Do you have a friend or a family member who deserves recognition for the care they provide to someone impacted by a skin, hair, or nail condition? Nominate them for our annual Tanny Nadon Caregiver Award! The honoree receives a certificate, an embroidered blanket, and a Spotlight Profile on CSPA's media channels. Nomination deadline, October 15 (12 midnight ET). Find out more about how to nominate someone here. 

Research News

  • The federal funding for SkIN Canada was renewed with $2M over five years, which means there will continue to be dedicated funding for research into skin, hair and nail conditions. The network will continue to focus on inflammatory skin conditions, skin cancers and skin fibrosis as well as expand opportunities for patients to be part of research teams. In addition, the network will support research into skin of colour and rare dermatological diseases.   

  • The CSPA, along with our Affiliate Member, the Dystrophic Epidermolysis Bullosa Research Association (DEBRA Canada), are patient research partners on a team development grant from SkIN Canada to develop a research network on rare genetic diseases.

Dermatologist of the Year


We are excited to announce that Dr. An-Wen Chan is the recipient of the CSPA’s Dermatologist of the Year award for his commitment to patient engagement in dermatology research. Congratulations Dr. Chan! 

Canadian Skin Magazine - Summer 2023

Our Canadian Skin summer issue is coming soon! This season we’re diving into Indigenous skin health, wound healing for darker skin types, life with facial differences, and more. Check here for this publication and for previous issues. 

Access to Medications


Zorvye (roflumilast), a new, non-steroid, topical medication has been approved by Health Canada for the treatment of plaque psoriasis in patients 12 years of age and over. Learn more about this drug here. 

Support the CSPA


“I deeply empathize with patients who have shared their journeys with me in the clinical setting on how their skin health has impacted their lives, and I often hear about how support groups and patient community resources are great sources of comfort for them. I am so proud to be involved in an outstanding organization with such strong patient-centered roots, and I hope to continue to be involved in patient advocacy and community supports.” 


--Dr. Megan Lam, MD, BSc Dermatology Resident, University of Toronto



 

Tips for a Healthy Summer

For many patients, summer marks a time for camping, travelling, beach fun, and socializing with family and friends in the sun. For healthcare professionals, it means that more patients are suffering from heat exhaustion, sunburn and bug bites.

This summer, encourage your patients to move more and sit less, wear sunscreen and insect repellant, stay cool and hydrated, and quit tobacco use. Equip them with resources from trusted sources on IMD, like the Public Health Association of Canada, Caring for Kids and the Melanoma Network of Canada to help them prevent harmful conditions like Lyme disease and skin cancer.

Learn More

 

 

 

 

 

FEATURED RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

 

 

 

 

 

VIEW THIS MONTH'S UPDATED CONTENT

Check out some of our recently updated topics!

 

 

 





Latest News From Wear Ease


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Compression Shorts & Capris


Slip into our compression bottoms offering therapeutic compression for the abdomen, hips, buttocks, thighs and calves. For immediate relief from swelling caused by lymphedema, lipedema, edema and post-surgical recovery.  Excellent options for fuller figures.



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LYMPHO NEWS

Dear friends,

With World Lymphoedema Day (6 March, 2023) fast approaching, it is great to hear what is happening throughout our communities to mark this worldwide event (see below) and raise awareness of lymphatic diseases, while also supporting patients and healthcare professionals.

Here in the UK, preparations are now well underway for the 11thILF conference and we are looking forward to welcoming you all. With the ILF being committed to putting patients at the heart of activities, a patient day is to be held on Thursday 15 June, 2023, where patients and their families will have the chance to network, gain new knowledge and share experiences about lymphoedema and related disorders. This day will close with a play in collaboration with Professor Peter Mortimer, ‘Let’s Talk Lymphoedema’ (to find out more, visit: https://www.lympho.org/enewsletter/link/fd9a5747a05543fa14588f50fe7389a0724a819a/706/35177). 

Please keep us updated with your news — it is important.

With best wishes from
Christine Moffatt CBE and the ILF Board of Directors

ILF 2023 Conference in Nottingham, UK

The 11th ILF conference is to be held in East Midlands Conference Centre, Nottingham, UK from 13–15 June 2023. Topics that will be covered include cellulitis, psychological impact of living with lymphoedema, children and young people, lipoedema, surgery, resource-limited initiatives, data and pathways of care, compression, obesity, wounds, reducing the risk of lymphoedema, and much more.

Nottingham
ILF 2023 is organised in collaboration with the International Lipoedema Association and the Lymphoedema Wales Clinical Network.


Registrations are now open, please visit: ILF website

International updates

Primary lymphoedema and genital oedema in children — workshop

On 28 January, 2023 this interactive workshop took place in Torino, Italy to address questions and doubts experienced by patients and parents who face the challenges of dealing with primary lymphoedema on a daily basis. It also gave them the opportunity to interact with leading international specialists in the field of lymphology. As Pernille Henriksen, a patient advocate, said: ‘As a patient with primary lymphedema, I am always excited to attend a conference dedicated to this rare disease. …. we should not underestimate how difficult it can be to have a chronic disease such as lymphedema. It literally can weigh you down. I believe that connecting with other patients with lymphedema can give an immense relief and support.’  

Swiss lymphoedema

To mark International Lymphoedema Day, the interdisciplinary team at KSW (Kantonsspital, Winterthur) is holding an event (in German) on 16 March 2023 for healthcare professionals to showcase their treatment options for comprehensive and individual patient care — such as differentiated clarifications and holistic care in the angiology oedema consultation, conservative decongestive treatments in the Institute for Therapy and Rehabilitation, dynamic lymphatic vessel examination and surgical options in plastic surgery. To register, visit: www.ksw.ch/event/lymphoedem-behandlungsansaetze-am-ksw/

Swiss Lymphoedema Framework and LymphoSuisse patient meeting

The Swiss Lymphoedema Framework and LymphoSuisse are also organising a meeting for patients (in French) on Saturday, 4 March 2023 at the L'hôpital de Beaumont, Lausanne, Switzerland, to celebrate World Lymphoedema and Lipoedema Day (6 March 2023). As well as educational presentations around these conditions, patients and caregivers will have the opportunity to share their stories.

The Canadian Lymphedema Framework’s (CLF's) quarterly print + digital publication, Pathways magazine, is an important communication tool to support our work. (Learn more about Pathways here: https://www.lympho.org/enewsletter/link/fd9a5747a05543fa14588f50fe7389a0724a819a/706/35180)

And, as part of the CLF's annual awareness and advocacy activities to coincide with World Lymphedema Day on 6 March, we are pleased to offer complimentary digital access to the Spring issue of Pathways to anyone who wishes to read it. We encourage you to sign up, and to invite your professional colleagues, health care team, family, advocates, and others to also sign up.

The digital edition is scheduled for release on 28 February, 2023. You will receive an email with a direct link to read the issue online when it is released. Sign up here: https://www.lympho.org/enewsletter/link/fd9a5747a05543fa14588f50fe7389a0724a819a/706/35181

Thank you for your interest — we are very happy to have you as a Pathways reader!

Industry support

The work of the ILF would not be possible without industry support. We thank the ILF Industry Partners for their continued engagement and support.


Learn more

Sign up to become an ILF Affiliate — it’s completely free and will ensure you stay informed about the goals and activities of the ILF and the work of our national frameworks around the world. ILF Affiliates benefit from:

· Reduced fees at future conferences
· Regular updates on activities and resources
· Opportunities to network with national lymphoedema frameworks
· Opportunities to influence future activities and direction.


 

New look, same incredible platform!

The IMD team is very proud and excited to showcase the latest version of the IMD patient engagement platform to our user base of healthcare professionals! Not only has our platform received a major facelift - but significant features have been added to ensure that you are equipped with the best tools to inform and engage your patients on their treatment plan leading to a happier, healthier life!

With major accessibility improvements, the ability to create custom information packages for treatment needs, improved patient email summaries and more, be sure to check out the new and improved IMD platform.

Please use your credentials to sign in to your IMD account, and contact support@imdhealth.com if you have any questions. Learn more about IMD's awesome new features that are available to you here

 

CHECK OUT THE NEW EXPERIENCE

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 


 

 

Evenity's healthcare professional and patient resources are now available within the Osteoporosis topic - including patient brochures, a self-injection guide and video, and a dosing guide. 

VIEW EVENITY

 

 

 

Find information about EVUSHELD for the prevention of COVID-19 illness in adults and adolescents who have a weaker immune system and are unlikely to be protected by a COVID-19 vaccine. Resources include a patient brochure, introduction, summary, and clinical study overview.

 

VIEW EVUSHELD

 

 

 

Find resources for healthcare professionals including a body map counselling tool, a checklist to identify and monitor patient signs and symptoms associated with adverse events related to Pembrolizumab, and other tools.

 

 

VIEW KEYTRUDA

 

 

PAAB aims to protect Canadians by ensuring that advertising to HCPs is truthful, balanced and evidence based. We need your input to ensure that drug advertising meets your expectations and needs. Please take 5 minutes to complete the survey. 

 

 

 

VIEW PAAB

 

 

 

Find new healthcare professional and patient resources from Prolia within the Osteoporosis topic, including patient FAQs, leave behinds, self-injection guides, and more to support you and your patients during and post consultation.

 

 

VIEW PROLIA

 

 

 

Find new healthcare professional and patient resources from Repatha within the High Cholesterol topic, including patient brochures and FAQs, self-injection video tutorials, a dosing card, and helpful patient profiles.

 

 

VIEW REPATHA

 

VIEW THIS MONTHS UPDATED CONTENT!

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 



Announcing newly designated LE&RN Comprehensive and Network Centers of Excellence

Dear LE&RN Community,

It is with great pride in our lymphatic community that we announce these newly designated LE&RN Referral Network, Surgery, Surgery Network and Conservative Care Centers of Excellence in the Diagnosis and Treatment of Lymphatic Diseases. The following 5 institutions now join our current list of 45 Centers around the globe, for a total of 50 Centers dedicated to improving the lives of all those living with lymphatic diseases. The newly designated Centers of Excellence are:

Referral Network of Excellence (all services provided within the institution and/or nearby collaborating care providers):
  • University of Miami Health Services – Miami, Florida
Surgery Centers of Excellence (all surgical and follow-up services provided within the same institution and its affiliates within close geographical proximity):
  • Fondazione Policlinico Universitario - Agostino Gemelli IRCCS – Rome, Italy
  • Santa Creu i Sant Pau - Clinica Planas – Barcelona, Spain 
Surgery Network Center of Excellence (all surgical and follow-up services provided within the institution and/or nearby collaborating care providers):
  • Baptist MD Anderson Cancer Center – Jacksonville, Florida
Conservative Care Center of Excellence (all conservative care treatment services provided within the same institution and its affiliates within close geographical proximity):
  • Sanwari Bai Surgical Center – New Delhi, India

The Global Oversight Committee continues to take on the challenge of rigorously vetting applications to guarantee compliance with strict standards. Led by Professor Peter Mortimer (St. George's, University of London, UK) and Melissa Aldrich, Ph.D. (UT Health, TX), the Oversight Committee includes nineteen additional lymphatic disease experts from Sweden, the Netherlands, France, Germany, Belgium, the United Kingdom, Italy, Australia and the United States. We thank them for this incredible service to the community.

The LE&RN Centers of Excellence website contains links to all these institutions as well as more information about the program and standards. We welcome hearing from patient advocates who utilize the services of these institutions and who would be willing to serve on Affiliate Boards which will work with LE&RN and the Institutions on standards compliance and advancement in care.

You can help by completing the patient survey at LymphaticNetwork.org/COEsurvey after your interaction with a COE and offering your time to an Affiliate Board by emailing us at COE@LymphaticNetwork.org.

Beginning in mid-November 2022, we will be accepting Letters of Intent from institutions interested in applying for consideration as future LE&RN Centers of Excellence.

It is a good day for the lymphatic disease community. I thank and congratulate all who have played a role in this achievement, including LE&RN Supporting Members and donors. These milestones would not be possible without that support.
 
Sincerely,

William Repicci
President & CEO, LE&RN


NLN Expert Clinician FAQs - click here to read


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Not a Member? Become one today!

Explore the Patient Resources Page Here

Conference Information

Black Attire Networking Reception

The conference will open with a "Black Attire" networking reception in the Exhibit Hall on Thursday evening.
Whether you would like to come in black casual wear, black formal wear, black business attire, or any other black attire appropriate for the professional conference setting; we invite you to show up in black to kick off the conference showing solidarity, united in our quest to further Lymphology by elevating 
The Art and Science of Surgery and Therapy.

Registrants can purchase tickets for guests to attend this event.

More Information Here

Featured Sponsor

medi USA is the Magenta Sponsor for the National Lymphedema Network. The company offers an array of compresison garments from custom and ready to wear options, elastic and inelastic, daytime and nightime, but they have so much more to offer! Click below to visit their site!

More on medi USA

medi is also the sponsor for this month’s

MicroConference™

Free online education activity for NLN members
August 27, 2022 12:00- 2:15 pm EST

Members Log in Here

Upcoming Clinical Focus Group

Friday August 26, 2022 6:30 pm ET

Facilitated by Tia Gray & Donald Thomas, this NLN Clinical Focus Group on Oncology will focus on topics surrounding Oncology Lymphedema Practice.

This meeting will focus on Coping with Lymphedema and Body Image, including a pre-recorded conversation with Dr. Erica Dawkins PsyD, MED, CSP, Clinical Psychologist, Professor, Clinical Sexologist and Founder of Revolutionary Perspectives.

These meetings are for members only.
Each session will be recorded for future viewing on the membership platform.

Members Log in Here

Lymphedema in the News

Stanford University Enrolls First Subject in HEAL (Human Upper Extremity Acebilustat Lymphedema) Trial

Read Article Here

Breast Cancer Survivor Champions Federal Lymphedema Legislation

Watch Video Here


 

For more information, click here to read the newsletter 


 Information on Truncal Lymphedema: Click here to read

Edema is the medical term for swelling. Body parts swell from injury or inflammation. It can affect a small area or the entire body.
Edema | COR Medical Group


Lymphedema is swelling caused by excess lymphatic fluid (lymph) collecting in the body's soft tissues, usually in the arms or legs. It can affect one or both sides of the body. This is a chronic condition for which there is no cure. Treatment methods are available to manage it. 



If you suspect that you have one of these conditions, contact your physician as soon as possible.
 

When Swelling, Edema or Lymphedema affect the FEET, it may be difficult to find footwear that supports and fits correctly.

Paradigm Medical Offers Exceptional Solutions for These Conditions!


*Classic Slide*
PSL600 By Pedors

EXTRA DEPTH
EXTRA EXTRA EXTRA WIDE
GREAT RANGE OF SIZES 

 

Designed for people with VERY swollen feet, or who may wear braces, orthotic devices, or bandages.

Morbid Obesity, Venous Disease and today’s treatments for cancer can lead to a compromised lymphatic system and severe swelling/lymphdema in the legs including the feet. It can be difficult for patients and healthcare providers to find the correct footwear to manage these specific needs.

Paradigm Medical is pleased to offer the 
Pedors Classic Slide.


This shoe allows the foot to be placed entirely on the footbed while the long adjustable touch closure straps contour the foot for a customized fit.

For proper size selection, start with your normal shoe size (by length), ensuring that the specific shoe has plenty of depth and a deep toe-box to accommodate bandages and/or swelling in the foot, but also in the toes. The other important measurement is foot girth because the swelling and/or bandages can caused the foot to change in size and volume.

DOWNLOAD the Pedors Shoe Fitting Guide HERE!
Pedors Classic Slide PSL600 - Available in 6E width only

MEN'S SIZES:  5 to 15 (not available in half-sizes)
WOMEN'S SIZES: 7 to 17 (not available in half sizes)

The Pedors Classic Slide is only currently available in the 6E (XXX-W) width, designed for people with very swollen feet. The adjustable velcro strap allows to adjust for girth and to secure the slide to the foot.

FEATURES:  Pedoprene™ Stretch Upper, Touch Closure Strap(s), Removable Insert for Custom Orthotics, Wide Midfoot, Sturdy and Supportive, Pedoprene upper panel can be heat molded.


ORDER THE PEDORS CLASSIC SLIDE FOR EXTRA WIDE OR VERY SWOLLEN FEET


Looking for other solutions for Edema and Lymphedema? CLICK HERE! We have MORE OPTIONS!



Classix MAX Orthopedic Shoe

Best for Moderate to Severe Edema and Lymphedema



 

HELP YOUR PATIENTS HAVE A HAPPY, HEALTHY SUMMER WITH IMD!

For many patients, summer marks a time for camping, travelling, beach fun and socializing with family and friends in the sweet heat. For healthcare professionals, it means that more patients are suffering from heat exhaustion, sunburn and bug bites. Now is the perfect time to share resources with your patients to help them have a healthy and happy summer. 

The IMD Health Patient Engagement Platform offers resources on summer Health from trusted sources like the Public Health Association of CanadaCaring for Kids and the Melanoma Network of Canada to better engage and educate patients prepare for the outdoors and prevent harmful conditions like Lyme disease and heat rash. With content that covers tick hiding spots, insect repellents, permethrin-treated clothing, and more - IMD has the educational resources your patients need to have a safe and healthy summer. 

VIEW RESOURCES

 

NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 

 

 

 

 

Do your patients have pollen or outdoor mold allergies? Aerobiology Research Laboratories can help you educate your patients on how to reduce health effects and improve their quality of life. Send your patients a resource package on accessing daily pollen levels, symptom trackers, and more tips to minimize exposure.

VIEW AEROBIOLOGY


 

 

IMD offers resources for healthcare professionals and patients on Aranesp coping with anemia due to Chronic Kidney Disease, including disease state information, healthy living tips, self-injection guides, and more to support you and your patients during and post consultation.

 

VIEW ARANESP

 

 

Cetaphil has resources to help support your patients suffering from dry, sensitive skin, under the following condition areas: Acne, Rosacea, Atopic Dermatitis (Eczema), and Psoriasis.These resources can easily be emailed to a patient as part of their consultation.

 

VIEW CETAPHIL

 

Access content from DDAVP within the Bedwetting and Bedwetting: What you need to know topic that includes key information for HCPs, including a new infographic. These resources can easily be emailed to a patient as part of their consultation.

 

VIEW DDAVP

 

Find new healthcare professional and patient resources from Prolia within the Osteoporosis topic, including patient FAQs, leave behinds, self-injection guides, and more to support you and your patients during and post consultation.

 

VIEW PROLIA

 

Find new healthcare professional and patient resources from Repatha within the High Cholesterol topic, including patient brochures and FAQs, self-injection video tutorials, a dosing card, and helpful patient profiles.

 

VIEW REPATHA

 

THE IMD MEDICAL LIBRARY IS GROWING!

Check out this month's new health partners. Their patient-friendly resources are now available on IMD.

 

 

Brain tumours are unpredictable, complex, and remain incurable. Their effects are physical, emotional, financial, and can last a lifetime. That's why Brain Tumour Foundation of Canada is focused on giving hope to the estimated 55,000 Canadians currently living with a brain tumour. With a few clicks, you can send your patients engaging resources from Brain Tumour Foundation of Canada using the IMD Health patient education platform.

 

VIEW RESOURCES

 

 

The Canadian Lymphedema Framework aims to define and promote education for healthcare professionals and patients, to improve lymphedema management and provide access to comprehensive treatment. IMD Health has partnered with the Canadian Lymphedema Framework to bring their medically-vetted patient guides and fact sheets to your fingertips, both to reference during consultations and to email home to patients, family members, and caregivers.

 

VIEW RESOURCES

 

 

 

Pancreatic cancer has the highest mortality rate of all major cancers. Pancreatic Cancer Canada is committed to making an impact in raising the survival rate through increasing awareness of the disease and improving patient and family access to specialized care and support at every stage. Empower your patients to believe they play an instrumental role in the trajectory of their cancer with Pancreatic Cancer Canada's various resources including treatment options on IMD. 

 

VIEW RESOURCES

 

VIEW THIS MONTHS UPDATED CONTENT!

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 

  



Find out more about Lymphedema Program, McGill University Health Centre, a LE&RN Network of Excellence

Please click here to read


Additional Information and Resources


PDF Copies of the LIMPRINT Reports
Click here to View


Inform Yourself and Take Control

Click here to read the article  

Watch the video 


The Lymphedema Guru

  • Pediatric Lymphedema: The Story Behind Brylan's Feat Foundation - Click here to read
  • Chronic Wound Care: Reading the Weep - Click here to read
  • How to Locate a Qualified Lymphedema Therapist - Click here to read
  • Questions and Answers on Head and Neck Lymphedema (HNL) - Click here to read


Lymphedema Footwear


Paradigm is there to help you find the RIGHT footwear for lymphedema.

Please click here for more information on a few solutions for moderate to severe cases of lymphedema. 





L-Dex Technology provides new approach for prevention of cancer-related lymphedema - Click here for more information


iMD Health

 

 

 

 

Inform, educate, and support your patients with kidney cancer during kidney cancer awareness month!

 

World Kidney Cancer awareness day was on June 16th. On this day, the global community came together to raise awareness of the issues that patients and caregivers face everyday - and IMD is here to support healthcare professionals increase their patient's understanding of this disease.

Be sure to effectively educate your patients about kidney cancer with IMD's library of engaging pamphlets, diagrams and videos from our partnered oncology health organizations including the Canadian Cancer Society, Wellspring Cancer Support, and Young Adult Cancer Canada. All resources can be sent home to patients to review in their own time, and with their caregivers.

 

VIEW N

 


NEW RESOURCES FROM OUR INDUSTRY PARTNERS

To view content from our industry partners, please make sure you are signed into your IMD Health account. 


 

Do your patients have pollen or outdoor mold allergies? Aerobiology Research Laboratories can help you educate your patients on how to reduce health effects and improve their quality of life. Send your patients a resource package on accessing daily pollen levels, allergen forecasts for the season, symptom trackers, and tips to minimize exposure.

VIEW AEORBIOLOGY

 

 

 

Find AMGEVITA brochures and self administration videos for patients with plaque psoriasis, hidradenitis suppuratuva, uveitis, crohn's disease, ulcerative colitis, rheumatoid arthiris, ankylosing spondylitis, and for children with polyarticular juvenile idiopathic arthritis or uveitis.

VIEW AMGEVITA

 

Find Enbrel brochures for patients with plaque psoriasis, rheumatoid arthritis, psoriatic arthritis, ankylosing spondylitis, and for children with pediatric psoriasis or juvenile idiopathic arthritis, as well as information about Enliven, the Enbrel support program.

VIEW ENBREL


Of all the kidney cancers, renal cell carcinoma (RCC) is the most common. Click here to learn more about how Merck Canada is shedding light on renal cell carcinoma, and to watch their informative video on RCC in Canada.

VIEW MERCK

 

 

 

 

Find a guide to Otezla treatment for moderate-to-severe plaque psoriasis, psoriatic arthritis, or oral ulcers associated with behçet’s disease. Send Otzela's resources home with your patients to review in their own time, and with their caregivers.

VIEW OTEZLA


 

Stelara's patient and healthcare professional content is available in crohn's disease and ulcerative colitis, including a Biologics Comparison Tool. These resources can be sent home to patients and their caregivers for self-led patient education. 

VIEW STELER


View this month's updated content!

170 conditions and procedures have received updates on the IMD platform! These conditions and procedures include:

 

 

 


Connect with IMD on Social Media!

 

 

 


Questions, comments or concerns? Email info@imdhealth.com for further inquiries.

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Lymphedema Association of Ontario
Mailing Address: 262-2869 Bloor St. W., Toronto, ON M8X 1B3 Canada
1-877-723-0033 | 416-410-2250 | info@lymphontario.ca
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