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Join Wear Ease at the Following Events


2022 Essentially Women Focus Conference

May 1-3, 2022


Sheraton Sand Key Resort

Clearwater Beach, FL

We will be at Booth #402


More Details Here


Lymphedema Seminars

Virtual Live on Zoom


"Practical Clinical Applications & Evaluation Tools for Lymphedema"

May 7 & July 9

__________________________


Live In-Person Seminar


"Networking & Educational Seminar for Lymphedema Therapists"

October 28-30

Eisenhower Medical Center

Rancho Mirage, near Palm Springs, CA


More Details Here

Lymphedema and Pelvic Health Awareness Week 2022


May 9-13

Virtual Format on Facebook/Instagram

More Details Here

Global Run/Walk to Fight Lymphatic Diseases


May 15

Virtual walk and in person run/walk in Boston


More Details Here

Register Now!

Remarkable Cancer Survivors' Guide #9

The Science of Empowerment

And What You Should Be Doing

Presented by:

Dr. Rob Rutledge

Thursday, April 21, 2022 - 1:00 - 2:00 PM ET

About this webinar:
In this webinar CCSN is joined by Dr. Rob Rutledge, Radiation Oncologist as he provides an update on the science of empowerment & what you should be doing about it.  More information about this webinar will be available soon.

NOTE: THIS WEBINAR WILL BE TAKING PLACE ON ZOOM. The Zoom link and all subsequent details will be provided after registration.

About the presenter:
Dr. Rob Rutledge is a Radiation Oncologist in Halifax, Nova Scotia, specializing in breast, prostate and pediatric cancers. He is also an Associate Professor in the Faculty of Medicine at Dalhousie University.

In 1999, Rob co-created the ‘Skills for Healing’ Cancer Weekend Retreats. These weekend support groups teach a powerful and integrated approach to the cancer diagnosis and ways to heal at levels of body, mind and spirit. To date, more than 2000 people have attended 60+ retreats in over 30 cities across Canada and abroad.

Rob is the CEO and Chair of the Healing and Cancer Foundation, a Registered Charity that freely offers educational videos, documentaries, and webcasting seminars. He is co-author of the book The Healing Circle, which captures the teachings and inspirational stories from the weekend retreats. Rob has received a Cancer Care Nova Scotia Award for Excellence in Patient Care, and Doctors Nova Scotia presented him with a Health Promotion Award in recognition of his contribution to physician health and health promotion in cancer patients.

Can't attend?
Be sure to register in order to have a copy of the presentation sent to you after the webinar. 
 
Register Now!
Check out our website for information about our other upcoming webinars. 
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@Stomachcancerca - information and resources on stomach cancer 
@Cervicalcanca - information and resources on cervical cancer
@Melanomacan - information and resources on melanoma
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@LiverCancerCa - information and resources on liver cancer

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Click here to watch the LE&RN Symposium Series


NIH Begins Planning for National Commission on Lymphatic Research - Click here to read 

International Lymphoedema Framework - LYMPHO NEWS

LYMPHO NEWS

Dear All,


We are happy to present you with the latest news from the International Lymphoedema Framework (ILF).

The main focus of this newsletter is a new survey which has just been released! The survey aims to explore what education and learning resources medical practitioners and lymphoedema therapists need to treat children and young people with lymphoedema.

You can read more about the project and find links for the survey in this newsletter.

Enjoy your reading!

With best wishes,

Christine Moffatt on behalf of the ILF Board of Directors

New survey: Education need for HCPs working with children and young people with lymphoedema

What education and learning resources do medical practitioners and lymphoedema therapists need to treat children and young people with lymphoedema?

A new survey investigates the need of education for health care practioners (HCPs) working with children and young people with lymphoedema.

Our research shows that lymphoedema practitioners and medical practitioners in many parts of the world have found treating children and young people with lymphoedema very challenging. Only few countries have specific guidelines and there are very few opportunities to attend specific training in treating paediatric lymphoedema. 

This project is a collaboration between ILF, Lymphoedema Wales, Philadelphia College of Osteopathic Medicine (USA), Prof Dr Pinar Borman (Turkey) and the Children’s Lymphoedema Special Interest Group (CLSIG, UK).

It is an opportunity to share your views on what education and learning resources would be useful.

We hope that the findings from the project can inform future developments by lymphoedema programme educators, academic organisations and corporate partners who do so much to support this specialism.

The survey is available in English, Welsh, Turkish and Spanish.

Read more
Take the survey now

Last chance: ILF 2021 on-demand

19 April is your last chance to watch the ILF 2021 Conference recordings on-demand.

ILF 2021 on-demand includes parts of the extensive scientific programme on lymphoedema and related topics. Furthermore, recordings of

industry symposia and the industry workshops are available.

ILF 2021 on-demand

Lymphoedema Awareness

ILF is continously working on sharing knowledge and creating awareness about lymphoedema.


During the international Lymphoedema Awareness Week, 6 - 11 March, the national frameworks contributed actively to spreading awareness about lymphoedema and its treatment and management through many national activities and initiatives.


At the ILF website you can find more information about the frameworks and their work.

Read more

Recent ILF Publications

Read here
Read here
Read here


PDF Copies of the LIMPRINT Reports
Click here to View


LE&RN Symposium Series

Click here to view


Inform Yourself and Take Control

Click here to read the article  

Watch the video 


LYMPHEDEMA FOOTWEAR 


We are here to help you find the RIGHT footwear for patients with lymphedema. Please click here for more information on a few solutions for moderate to severe cases of lymphedema. 




Click here

to find out what's happening for World Lymphedema Day from Lymphatic Education and Research Network


L-Dex Technology provides new approach for prevention of cancer-related lymphedema 

Click here for more information

Congratulations to the LE&RN India Chapter!
Arun Rekha and Dr. S. Gogia awarded best poster
World Congress of International Society of Lymphology

Click here for more information



International Lymphoedema Framework - LYMPHO NEWS

LYMPHO NEWS

Dear All,


We are happy to present to you the latest news from the ILF.


We look much forward to all the activities lined up for March for raising awareness about lymphoedema all over the world. In this newsletter you can read why you wouldn't miss following the ILF closely during the Lymphoedema Awareness Week, 6 - 11 March.


You can also read about our recent agreed collaboration with the International Lipoedema Association.


The survey on children and young people with lymphoedema is soon being closed, but there is still time to contribute. Also remember that the last chance of watching the ILF 2021 Conference on-demand is approaching in only a few weeks.


Enjoy your reading!


With best wishes,

Christine Moffatt on behalf of the ILF Board of Directors

Lymphoedema Awareness Week

Lymphoedema Awareness Week 2022 is getting close!


Follow the ILF on social media during the week of 6 - 11 March to learn more about the many activities organized by our national frameworks for raising awareness about lymphoedema and its treatment and management worldwide.


You can follow the ILF at Facebook,

LinkedInTwitter and Instagram and at our website www.lympho.org

Children and young people living with lymphoedema

An international survey is seeking to validate a quality of life tool for children and young people living with lymphoedema.


We have had responses from children and young people in 24 countries ranging from Syria and Nigeria to Australia.


The closing date is approaching so if you have a child with lymphoedema (or know one) aged between 5 and 21 years, please direct them to the survey now. Translations in several languages are available.

Take the survey now

International Lipoedema Association

ILF and the newly founded International Lipoedema Association (ILA) have signed a letter of intent announcing their collaboration. The collaboration will include conferences and specific projects.


ILA was recently founded by a team of passionate healthcare professionals to create the best possible treatment for lipoedema patients based on clinical evidence, long-standing experience, and a passion for improved therapy outcomes.


Lipoedema and obesity-related-lymphoedema often appear together and both diseases are usually diagnosed and treated by the same healthcare professionals. So, what could be more obvious than creating a strong collaboration between the ILA and ILF.

Read more

Last chance: ILF 2021 on-demand

Did you miss an interesting presentation during the ILF 2021 Conference - or would you like to watch one or more sessions again?


15 March is your last chance to watch parts of the scientific programme, the

industry symposia, and the industry workshops on-demand.


If you did not attend the conference, it is still possible to register for on-demand watching.

ILF 2021 on-demand

Recently published ILF publications with open access

Read here
Read here
Read here

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FOLLOW US


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February 2022 Monthly E-News

Click here for more information


Canadian Cancer Survivor Network 
January 2022 Update


Please click here to view


This newsletter was generously sponsored by Juzo USA

Family-owned since 1912, Juzo manufactures a variety of compression therapy garments designed specifically to offer people affected by venous and lymphatic conditions the freedom to keep moving and maintain an active lifestyle. A global leader, Juzo provides solutions to help improve its customers’ quality of life, not inhibit it.  Juzo continuously invests in technology and high quality materials to ensure its products provide comfort, style, ease of use, medical therapy and value. Advancements including FiberSoft® technology, seasonal colors, attractive styles and fun print designs, promote comfort and fashion without compromising therapeutic compression. 




Kathy Bates Health: Actress 'Went Berserk' after Diagnosis of 'Incurable' Condition

published Jan 20, 2022

by Express

Read Article

New View of

Lymph Nodes Shows

Immune Cells in Real Time

published Jan 27, 2022

by Cornell Chronicle

Read Article

From Assessment to Management, How Best to Care for Cancer Survivors at Risk for Lymphedema

published Jan 25, 2022

by HemOnc Today

Read Article

Research Illuminates How Melanoma Readies Lymph Nodes for Tumor Spread


published Jan 19, 2022

by Weill Cornell Medicine Newsroom

Read Article

Lymphedema Employment Opportunity

sponsored by Mercy


Mercy Medical Center in Baltimore, Maryland is looking for an exceptional Occupational Therapist interested in focusing on lymphedema therapy and upper extremity ortho to join their team.

Learn More & Apply

Lymphedema Employment Opportunity

sponsored by medi USA

medi USA is seeking an additional Clinical Education Manager in North Carolina.  Are you passionate and motivated about lymphedema yet looking a change?  Do you have an interest in clinician and patient education focused on compression solutions?  Does working with a broader group of CLT’s with a goal of establishing patient independence over lymphedema interest you?  We are seeking a CLT as a full-time Clinical Education Manager in a role that will involve individual and group education, formal and clinic training, advanced problem-solving, in a multi-state area. Click below if you're interested in joining the team!   

Learn More & Apply

National Lymphedema Network
PO Box 1008
New York, NY 10276

lymphnet.org
nln@lymphnet.org
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International Lymphoedema Framework - LYMPHO NEWS

LYMPHO NEWS

Dear All,


First of all, a happy new year to you all!


It doesn’t seem possible that we have managed to get to the end of a frustrating year with all the lockdowns, inability to travel, vaccination passports, and PCR tests. And the bewildering numbers of people worldwide who have contracted the virus, some mildly but many needing hospital admission. And how did that affect the lymphoedema community worldwide? So many services were cancelled as staff were directed to more acute areas of work causing ongoing concern and frustration to the people living with it. In places like Kerala, India, it looked as though a complete service might have to be closed because there was no funding – but through charities, including the ILF, the service is still running.


In the midst of all this, we at the ILF, were able to continue our work in promoting the management of lymphoedema internationally continuing with further evidence produced by the LIMPRINT study, work done in conjunction with the Welsh Framework on genital oedema, a publication on chronic oedema outcomes, and research around the Quality of Life in children with lymphoedema. Much of this has now been published and you will find the link to these within the newsletter.


After having to cancel the 10th ILF Conference twice during 2021 it was a great relief that it went ahead in November. Over 900 people attended either in person or online and the range of speakers, workshops, posters, and the time to network was, according to evaluations, certainly worth waiting for.


So here we are in 2022! We are excited to tell you that we have a new Framework in Saudi Arabia – we are gradually moving into parts of the world we have had no contact with before. Welcome to the Saudi Arabia Lymphoedema Framework.


Dr S. R. Narahari of the Institute of Applied Dermatology in Kerala, India, has been appointed as an ILF Director and will head up a stream within the charity to look at the needs of providing lymphoedema resources within poorly resourced countries.


And, lastly, some recognition for a patient in South Australia – Monique Bareham - through her work and the work of other members of the Lymphoedema Association of South Australia, the South Australian Government is now running a subsidy scheme for compression garments. For this work Monique has been named the SA Local Hero.


We are so looking forward to working with you all and keeping you updated in 2022.

With best wishes,


Christine Moffatt on behalf of the ILF Board of Directors

Changes in Board of Directors

It is our pleasure to announce a change in the ILF Board of Directors.


Professor Sue Gordon, Flinders University, Australia, has stepped down after serving the ILF Board of Directors for two years. We would like to express a deepfelt thank to Sue for her outstanding contribution to the ILF.


Dr S. R. Narahari has joined the Board of Directors as new director with a special focus on low-resource countries.


Dr Narahari is a dermatologist and the director of the Institute of Applied Dermatology (IAD), an internationally acknowledged centre for morbidity management and disability prevention of Lymphatic Filariasis and other lymphoedemas. It is located in resource-poor primary health care and a challenging setting in Kasaragod, Kerala, India.


He pioneered clinician-led bedside integrative medicine by combining therapeutics of Ayurveda & Yoga with Biomedicine for lymphoedema. He leads integrative medicine research, intersectoral collaborations, and patient-centred care and education to meet the needs of chronic diseases.


The organisation’s current goal is to analyse remaining lymphoedema data and set up satellite lymphoedema treatment services in endemic regions of Lymphatic Filariasis. To date, Dr Narahari has published 85 papers. All his work in IAD is honorary.


We look much forward to working with Dr Narahari as our new director.

Read more

Saudi Arabia new National Lymphoedema Framework

We are proud to announce that Saudi Arabia Lymphoedema Framework (SALF) has joined the ILF as a new national lymphoedema framework.


SALF is a non-profit organisation that works nationally to uphold the philosophy of the ILF and collaborates with other national frameworks in other parts of the world.


The mission of SALF is to improve the management, training and research in lymphology, lymphoedema and related disorders in the Kingdom of Saudi Arabia.


Patients and health care professionals are the center of the work of SALF. SALF aims to promote and facilitate the best possible standards of care, connecting HCPs in one platform, influencing the research, and encouraging training and education, which are following the National Transformation Program 2030.


SALF is lead by President Dr Asma Alderaa and the Executive Committee.


Find the complete list of national frameworks here.

Read more

New Industry Partner

We are happy to welcome Lympha Press as new ILF Industry Partner.


Lympha Press is a leading global brand in treatment of lymphoedema, lipoedema, nonhealing wounds and venous disorders. 


Mego Afek offers a full line of devices from a compact system designed for quality home treatment, made with consultation with manual lymph drainage therapists and offers a choice of five treatment cycles using pneumatic compression therapy and smart garments systems to the most advanced system. the most advanced system.

The Lympha Press systems offering state of the art features and therapy modes, for hospitals and clinics.


Lympha Press offers one of the world’s most versatile and advanced dynamic compression therapy systems with proven clinical evidence in over 20 peer-reviewed publications.


Read more

Watch ILF 2021 on-demand

Did you miss an interesting presentation during the ILF 2021 Conference - or would you like to watch one or more sessions again?


It is possible to watch parts of the scientific programme, the

industry symposia, and the industry workshops on-demand. The videos are available until 15 March 2022. Please notice that CME credits are available until 18 February.  


If you did not attend the conference, it is still possible to register for on-demand watching.

Register for ILF 2021 on-demand

Recently published ILF publications with open access

Read here
Read here
Read here

Learn More

Sign up to become an ILF Affiliate - it’s completely free and will ensure you stay informed about the goals and activities of the ILF and the work of our national frameworks around the world. ILF Affiliates benefit from:

  • Reduced fees at future conferences
  • Regular updates on activities and resources
  • Opportunities to network with national lymphoedema frameworks
  • Opportunities to influence future activities and direction.
Sign up now

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Lymphedema Association of Ontario
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