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Challenge Lymphedema 2022:

Virtual Fundraiser


We are pleased to share that we are hosting another virtual fundraiser for 2022 - Are YOU willing to participate?

OR DONATE NOW! 




 

The challenge?  Whatever you want it to be!


Are you an avid walker, reader, cyclist, swimmer, yogi, or knitter? 

For this years Virtual Fundraiser, we challenge YOU to do whatever it is that you LOVE and help us to raise much needed funds for the LAO at the same time.



Join us on September 12th!



Our Goals and Areas that need Support


1. We are launching a Garment Program pilot on Sept 12-Dec 31 2022 to provide garments to those in need and to enhance our already existing, and well received, Compassion Fund program. This will be a partnership with our valuable Corporate members and Therapists. More details will be provided closer to the launch date.


2. Compassion Fund. The intention of this Fund is to provide some treatment and teach self management of the condition to patients that need financial assistance


3. Info-line support: We recorded an increase in the number of calls to our support line and we need to track and analyze the data, for creating a business case to present to the Ministry of Health to advocate on behalf of patients 


3. Webinars and Virtual Support Groups: Continuing to provide webinars to educate and raise awareness to the LE community as well as provide a community of support for patients. 



Help us to meet our goal to provide all of these services to the often overlooked Lymphedema Community


We want to raise $20,000 for these

programs and initiatives by the beginning of 2023


And post your progress and activities on your preferred social media platform using the #ChallengeLymphedema hashtag and #LAO

or send us your images and updates directly by Email 

For our non virtual givers, you can give them this Printable form to be mailed in

Helping Patients with Lymphedema





The following article was provided by Pam Renneberg, member of the RMTAO and member of the Lymphedema Association of Ontario, who discusses her experiences as a Certified Lymphedema Therapist and why she believes it is an important tool that RMTs can add to their practices.


To read the full article, please click here



Upcoming events

    • 29 Sep 2022
    • 5:00 PM - 6:00 PM
    • Zoom
    Register


    Presented by Lymphology Skincare:


    Lymph Hustle Self Care Plan and the Integrative Management of Breast Cancer Related Lymphedema


    with Maddie Simone and Dr. Meighan Valero



    The LAO is thrilled to welcome Maddie Simone to discuss your "Lymph Hustle Self Care Plan" followed by Dr. Valero, who will highlight key features of the integrative management of Breast Cancer Related Lymphedema. Dr. Valero will review risk reduction strategies and holistic approaches to treatment management and prevention


    Register today! 


    Watch Dr. Valero's TEDxTalk here


    * webinar will be recorded *

    About our presenters


    Maddie Simone:


    Since 2012, Maddie has been a certified lymphedema therapist and completed her studies at the Dr. Vodder School International. She founded Lymphology Skincare in October 2021. Maddie leads this company with the utmost passion for helping and supporting those with Lymphedema in honour of her brothers who passed away of a rare aortic condition that causes aortic ruptures and rare cancer. 


    The motivation behind this venture is to fulfill needs of patients with Lymphedema and provide access to a product that is entirely Canadian made. It is the first skincare line to launch in Canada with a focus on lymphatic care. 


    Maddie Simone has also started the Lymphedema Awareness Network LaSalle, Windsor, Essex County and has done fundraising for the LAO for 5 years resulting in top fundraising results each year for the LAO's Compassion Fund. Maddie has also started an online store, Angelone Health, providing supplies and items for lymphedema or lymphatic issue management and self care, serving Canada, the US and the UK.



    Dr. Meighan Valero:


    Dr. Valero is a Board Certified Naturopathic Doctor and Fellow of the American Board of Naturopathic Oncology. Her practice focus is in adjunctive cancer care and her passion lies in developing individualized treatment protocols for those who wish to prevent cancer, those living with cancer, and those with a desire to learn the tools and necessary lifestyle changes to prevent a recurrence of a previously treated cancer.


    She worked as a cancer researcher for 5 years at the University of Windsor studying how natural compounds induce apoptosis (cell death) in various cancer cell lines. Dr. Valero was featured as a speaker for TEDx on Naturopathic Oncology and she is the Founder, CEO, and Clinical Director of Valero Wellness, a clinic based in Windsor, ON, focused on supporting and empowering individuals to treat the root cause of disease and promote wellness and optimal living.


    Dr. Valero is currently serving Windsor-Essex County and Michigan communities. She has authored several research publications including: Complementary Strategies for the Management of Radiation Therapy Side Effects published in the Journal of the Advanced Practitioner in Oncology, Identifying and Treating Magnesium Deficiency in Cancer Patients Receiving Platinum-Based Chemotherapy published in Natural Medicine Journal; Chemotherapy-Related Cognitive Impairment; Chemotherapy and Radiation-Induced Oral Mucositis published in The Journal of IHP.

    • 12 Oct 2022
    • 5:00 PM - 6:00 PM
    • Zoom
    Register


    Virtual Support Group 

    Oct 12th, 5:00 pm (EST) on ZOOM

    _______________________________________________________


    Please join us for our monthly virtual support group consisting of lymphedema patients and LAO volunteers. Our support groups are a great opportunity for you to share and discuss your personal lymphedema management skills, information, hopes, fears, successes and hardships, all in a safe space to facilitate support and growth. 


    Join us on the second Wednesday of every month!


    ______________________________________________________________________

    Basic Housekeeping:

    • Please keep yourself on mute to reduce background noise
    • There is typically a Q&A period at the end, so please save your questions for then
    • Feel free to use the chat feature to ask questions or raise your hand to talk
    • Please do not take screenshots, photographs or videos. If the webinar is being recorded, it will be uploaded to the LAO website for you to access after the meeting.

    ______________________________________________________________________________________

    Disclaimer:


    The content of this presentation is confidential and property of the presenters. It is not intended to be distributed to any third party without their consent. As such, please do not screenshot, record, or tape the contents of this meeting or the individuals in attendance.


    The opinions expressed in the presentation are those of the presenter and not necessarily those of the LAO. Therefore, the LAO is not responsible for any content or information in the webinar. The LAO does not endorse any particular vendor product, company or personnel, and our webinars are for educational purposes only.


    Please note that if a webinar is being recorded you are providing consent to be recorded. You may keep your camera off if you wish to do so. 


    Moreover, Information collected through polls or surveys may be addressed in future meetings and in meeting notes, that are available for other patients access. Through your attendance, you have consented for The Lymphedema Association of Ontario to use your first name only, for confidentiality purposes in note taking. 


    • 13 Oct 2022
    • 6:30 PM - 8:00 PM
    • Zoom
    Register



    Chair Yoga with Hannah Senitt




    About Hannah:


    Hannah Senitt was inspired to create Blue Angel Yoga from a lifetime collection of experiences including cancer treatment, living with lymphedema and a vision for aging well. Hannah is both 200 hour Yoga Teacher trained & 'Get Fit where you Sit', Lakshmi Voelker Chair Yoga Teacher (LVCYT) Certified.  She holds a Diploma in Recreation Leadership and a Post-Grad in Recreation Management for Older Adults.


    'Yoga for me is a strategy to live better longer... and allow me to
    keep doing all the other things that I love.  Like cycling!' 


    Hannah also brings a sense of humour and play to her classes. She has completed level 5 improv training and has been known to be holding the mic in local stand up comedy shows. When not doing yoga or cycling she is working with volunteers at a local health centre or cross-stitching famous paintings.  

     

    Chair Yoga Webinar:


    This webinar will cover a combination of chair and standing poses focused on breath, de-stress, neck and shoulder release and alignment. This workshop is full of ideas to help support moving lymph fluid that can be incorporated into everyday life. 


    Join with a stable chair available like a kitchen chair or folding chair... no wheels! You will also need a long tie that they can wrap around your foot and hold the ends in each hand. This can be a tie, bathrobe strap or yoga strap etc.  


    Register today!

    • 09 Nov 2022
    • 5:00 PM - 6:00 PM
    • Zoom
    Register


    Virtual Support Group 

    Nov 9th, 5:00 pm (EST) on ZOOM

    _______________________________________________________


    Please join us for our monthly virtual support group consisting of lymphedema patients and LAO volunteers. Our support groups are a great opportunity for you to share and discuss your personal lymphedema management skills, information, hopes, fears, successes and hardships, all in a safe space to facilitate support and growth. 


    Join us on the second Wednesday of every month!


    ______________________________________________________________________

    Basic Housekeeping:

    • Please keep yourself on mute to reduce background noise
    • There is typically a Q&A period at the end, so please save your questions for then
    • Feel free to use the chat feature to ask questions or raise your hand to talk
    • Please do not take screenshots, photographs or videos. If the webinar is being recorded, it will be uploaded to the LAO website for you to access after the meeting.

    ______________________________________________________________________________________

    Disclaimer:


    The content of this presentation is confidential and property of the presenters. It is not intended to be distributed to any third party without their consent. As such, please do not screenshot, record, or tape the contents of this meeting or the individuals in attendance.


    The opinions expressed in the presentation are those of the presenter and not necessarily those of the LAO. Therefore, the LAO is not responsible for any content or information in the webinar. The LAO does not endorse any particular vendor product, company or personnel, and our webinars are for educational purposes only.


    Please note that if a webinar is being recorded you are providing consent to be recorded. You may keep your camera off if you wish to do so. 


    Moreover, Information collected through polls or surveys may be addressed in future meetings and in meeting notes, that are available for other patients access. Through your attendance, you have consented for The Lymphedema Association of Ontario to use your first name only, for confidentiality purposes in note taking. 

    • 14 Dec 2022
    • 5:00 PM - 6:00 PM
    • Zoom
    Register


    Virtual Support Group 

    Dec 14th, 5:00 pm (EST) on ZOOM

    _______________________________________________________


    Please join us for our monthly virtual support group consisting of lymphedema patients and LAO volunteers. Our support groups are a great opportunity for you to share and discuss your personal lymphedema management skills, information, hopes, fears, successes and hardships, all in a safe space to facilitate support and growth. 


    Join us on the second Wednesday of every month!


    ______________________________________________________________________

    Basic Housekeeping:

    • Please keep yourself on mute to reduce background noise
    • There is typically a Q&A period at the end, so please save your questions for then
    • Feel free to use the chat feature to ask questions or raise your hand to talk
    • Please do not take screenshots, photographs or videos. If the webinar is being recorded, it will be uploaded to the LAO website for you to access after the meeting.

    ______________________________________________________________________________________

    Disclaimer:


    The content of this presentation is confidential and property of the presenters. It is not intended to be distributed to any third party without their consent. As such, please do not screenshot, record, or tape the contents of this meeting or the individuals in attendance.


    The opinions expressed in the presentation are those of the presenter and not necessarily those of the LAO. Therefore, the LAO is not responsible for any content or information in the webinar. The LAO does not endorse any particular vendor product, company or personnel, and our webinars are for educational purposes only.


    Please note that if a webinar is being recorded you are providing consent to be recorded. You may keep your camera off if you wish to do so. 


    Moreover, Information collected through polls or surveys may be addressed in future meetings and in meeting notes, that are available for other patients access. Through your attendance, you have consented for The Lymphedema Association of Ontario to use your first name only, for confidentiality purposes in note taking. 



Dear Members,


I am sorry let you know that I tested positive for COVID last week and have been sick in bed since then. A few days ago, my husband also tested positive - there was no escaping this.  Three to four days of fever, sore throat and tiredness.  I had some enforced rest and sleep and feel better for it. My family doctor prescribed Paxlovid which I believe has helped me.  I am feeling better as I write this letter. I meant to write this after the AGM but could not get to it. 

The AGM on July 19th, 2022 met quorum and all of the required Resolutions were approved.  So we are now left with the paperwork to file and put everything in order. Many thanks to Don Bourgeois, our Lawyer who guided us through this process and also attended the AGM to answer questions.


We will be posting the Q & A on our website shortly and you can view at this link. The presentation by Dr. Lucasz Boba was extremely well received - thank you to Dr. Boba for volunteering his time.  We will not be sharing the presentation or the recording, however, we are hoping to invite Dr. Boba back to do a webinar at a later date.

Thank you to all Members who exercised their rights and registered and voted.  As you know this is an important task that is required of members, as we need quorum in order to have the AGM.  So Patients and Therapists, please do stay tuned and keep current on all the activities that are happening.


LAO Updates for August

Some important dates to keep in mind:

VSG - August 4th - completed. Thank you to Maddie Simone RMT for educating patients on creams.


August Membership Drive for Therapists and Retailers/Fitters. Please spread the word.

We are offering new Retailers/Fitters a $100 discount on the current membership fee - this is good to January 31st, 2023 when the membership renews. The sooner you sign up the better, so you can access all the benefits that the LAO offers.


We are also offering new therapists a $50.00 discount on the regular fee. The membership is good to the end of January 31st, when it renews.  The sooner you sign up the better so you can access the benefits the LAO offers.


Virtual Fundraiser launch is September 15th, please sign up here to participate as a team. The Canada Helps page has been set up, so you can register your Team here. This year we will be fundraising for the Compassion Fund and General Funds.  A contribution to the General Funds ensures that we continue to subsidize the Patient membership fees. Like most other organizations, we have faced and will be facing, added costs.  


We are also piloting "The Garment Program" starting Sept 15th to coincide with the VF. This pilot will start Sept 15th and run to December 31st, 2022.  Details are being worked out.  I am sure most of you will have read the recent Pathways magazine, where the CLF provided information on how each Canadian Province provides assistance to patients with Lymphedema.  Sadly, there is still no funding for treatment and also for the garments that we need to manage our Lymphedema.  We have decided to do something about it!! We have partnered with our Corporate members, Retailers and Fitters and Therapists to some funding to provide garments, bandages to people who cannot afford to purchase. We will be adding this to our current Compassion Fund application for approval on a case by case basis.


Please let us know if you can help us in any way - there is no time to lose. 

The time is now. Join us and let's get it done. 


Sincerely,



Dolores Steinwall

President of The Lymphedema Association of Ontario



Member Stories

Please continue to share your stories with us so that we can feature them in the next newsletter. 


To keep up to date with community Lymphedema news, events from other organizations, and resources, please click here for our page "Other Lymphedema News"


















Lymphedema Association of Ontario
Mailing Address: 262-2869 Bloor St. W., Toronto, ON M8X 1B3 Canada
1-877-723-0033 | 416-410-2250 | info@lymphontario.ca

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